
It's winter here in West Virginia. It's been sharply cold, with a wind chill that bites through the heaviest of sweatshirts. My hands feel as though they have been scrubbed raw every time I step outside into the biting, frigid air, despite the fact that I've been slathering them with lotion at every opportunity and wearing gloves. This morning, I'm stuffy, cold and rather miserable, as Mr. ReddHedd has brought home yet another ick that my crappo immune system has failed to fight off. Again. And I can't seem to keep my birdfeeders close to full, because the little winged buggers keep eating me out of seed and home.
At times like these, I go searching for some visual, mental or musical vacation.
Lately, though, I've been thinking that the relaxing is good and all, but that nagging in the back of my head about my New Year's resolution to try to be healthier ought to get me on a better path. I always think about doing better — I've got the shelf full of yoga and cardio DVDs to prove it — but I never seem to get there somehow with any consistency.
It's a sort of catch-22, having issues with your joints and an autoimmune thing to deal with, on top of just being so tired from the aforesaid issues. I keep telling myself that if I eat better and get more exercise, that will help, but how to do that when what you really crave is some Ben and Jerry's, a nap and a hot soak in the tub to ease your knees? That's a good question, isn't it? When you add in the fact that any level of exercise tends to make the joint pain much, much worse in the short term, even the easiest of walks starts to look daunting in the face of those backlash knees. But any extra weight that I put on myself adds an extra strain to my joints. And around we go.
But I keep working on it. Mainly because I refuse to allow this thing to run my life, thank you very much. And I'm not saying all of this to gripe or get some sort of pity thing going, but because I'm genuinely hoping that some of you all have had to deal with this sort of thing and have found a solution that you are willing to share. (If it's a solution that includes giving a momma more energy to play with her Peanut, all the better.)
This morning, I thought we could all talk a bit about the things we are doing — for ourselves or others — to be healthier. Whether its exercise or a change in your day-to-day eating habits or beginning to meditate or whatever you may be doing in the moment to build a better you.
My motivation for trying to do better comes in the form of a 3 and a half year old cutie pie that I would like to be around for a long, long time to come. To do just that, I need to start taking better care of myself, no matter how much it may pain me to do so. I have always tended to be one of those "take care of everyone else before yourself" sorts of people. But a friend said to me a while back that "what your family needs is for you to put on your own oxygen mask first, so that you'll be better able to help them with theirs in an emergency." It makes a lot of sense when you think about it — and I've been trying very hard not to be that person running around, gasping for my own air while helping everyone else on with their masks until I collapse.
Been there, done that.
So this morning, let's talk about whatever it is that you have been doing for yourself lately, to help get you to that next level, or to mellow out, or whatever goal you have set for yourself to be a better you. Pull up a chair…



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Fitz!
Christy!
That oxygen mask thingie…I resemble that remark.
My mommy just landed in Paris! First time.
For improvement today I will walk a little longer in the forest. And to be a better me I am trying to learn more about my motivation, to work with my energy instead of forcing myself to do things.
During the heavy depression years, if I wouldn’t take care of myself for my own sake, at least I was willing to take care of my children’s mother. It can work.
Do you have a sister? What would you advise her? Or one of us lovely lake ladies?
Re exercise, a lot of small movement can add up. Walk around the house. Move while you are sitting down. Even fidgeting counts :)
I don’t have anything I am doing right now, but we’re closing on a house in about 10 days that will allow our family some breathing space over the place we have now – which will help a ton. The yard is also huge, with old pines and I couldn’t count the number of bird houses and feeders the owners were leaving us. There is even a small apple orchard (ok, a few trees). I can’t wait to see the birds and animals we’ll be drawing once the snow goes away.
Ask Mr. ReddHedd for heavy ski mittens for Valentine’s Day. No reason to have cold hands.
We need those hands to be healthy!
If they feel raw you might change soap or use less soap on the backs, just do the fingers and palms.
I’m a cancer survivor, and my two major routes to keep it from coming back are moderate exercise and doing fun things with friends and family. I mean choosing things that make you laugh. Caring relationships are the meaning of life.
Being happy keeps your healthier, but how can you be happy? You’ll be happy if you focus on four things: gratitude (for what you have), joy (real pleasure in small things), zest (something in your life you’re exuberant about), and love (caring relationships in which you do things for others). If you have these things, you’ll be bubbling over with happiness.
GTurner
i’m right there with you, i’m 43 and have been overweight most of my life. my knees aren’t great and i have bunions enough for 3 people.
i joined a gym as a christmas gift to myself and have lost 5 pounds since then and feel better than i have in years.
have you tried swimming? or a water arobics class?
very easy on the joints
although my skin would make a lovely croc handbag!!
Wish I had clues for you Christy, but alas I am the last one to talk to about health habits.
I am finally over a 2 week long coughing/head crud which reduced my appetite enough that I lost the 4-5 pounds I needed to lose. The trick will be keeping them off.
As for mind mellow, that’s not happening here right now either. Job interview next weekend. Lots of stress. But deep breathing and trying to get enough sleep helps. It’s the lack of sleep that complicates everything else. As much as I love the Daily Show and Colbert, I’m just going to have to rely on Tivo for a while and turn out the lights and close the laptop.
As for the cold, dry stuff, we have a humidifier going 24/7 during this weather. It helps a lot. I’ve found some great soaps that don’t dry my skin and that’s made a big difference too (they also make yummy hand and body creams). Haven’t had the dry skin itchies in a long time *g*
Have to guess about your location, but for the general area it will be warmer in the next three days. Don’t ask about Wednesday, but maybe you’ll get something warm as a Valentine. Then starting Friday it’s going to be significantly warmer, and spring will be within sight. So today, and Wed-Thurs, are the end of the bad cold!
good morning people…
I have been haunting this site for a short while principally because of the Liggy Trial blogging (which has been excellent – many kudos to all involved)
I am a 46 yr old ex-trucker…and bothered with weight and joint pain… thus, I feel compelled to offer this suggestion… Tai Chi.
It has helped me. Give it a look
Liggy?
sheesh…
Tai Chi doesn’t make you smarter…
‘preview is your friend’
*sigh*
Dan in Canada! Welcome! Hope you will comment often.
Tai chi is a great idea. My sister’s husband just took that up and he just loves it. I’ve been thinking about finding a class for a long time, maybe your suggestion is just the nudge to get me moving.
On most browsers you can edit your comment within the first five minutes.
Best thing for the hands is this: One fine night, goop up a bunch of vaseline on your hands and then put on a pair of white cotton gloves and go to bed. In the morning, your hands will feel so soft.
By the way, the same thing goes for nail fungus. Except use Vicks Vapo rub. Do this for one week and I swear, the fungus is gone.
What’s wrong with your knees? I had an operation on one of mine in 1974 and they said then that I would have to have one on the other knee eventually. But — when that time came, I was working, had 3 children … you get the point.
Would a knee operation help you? If so, I say do it now! It only gets worse with time …..
Morning fellow pups.
I need to be reinvigourated. So today ( -10Celsius) I’m off for a skate here;
http://www.canadascapital.gc.c…..amp;lang=1
and a Scandinavian bath here;
http://www.lenordik.com/flash_en/flash.html
Have a powerful day.
A couple of very mild inexpensive things to do:
Epsom salts soak (maybe two cups in bath),very relaxing,
and I like the fizzy airborne (or similar generic)tablets in a drink for immune boost – you can even put them in warm water, but be careful – they fizz a lot more the hotter the water.
Oh, and green tea or any tea is great for a refresher.
(Sorry if you already do all this.)
PS: They sell the white gloves at the pharmacy.
Second the swimming comment for weightless exercise. Your yoga tapes are safe there on the shelf and I don’t want to add to the collection, but I have benefited a lot from 3 years of pilates. Most of the work is done from positions that don’t put weight on the knees. You can get a teacher that will work with your individual kneeds :)
And overall: this too shall pass. It’s a heavy duty time for our blog, you’re feeling under the weather, and you might be like some of us with a little extra winter weight. It’s the dark before the dawn. Spring will come, your sickness will lift, you’ll get new energy, the Libby trial will end. It’s ok to dial it back a couple, to get thru this period.
You wouldn’t happen to be a perfectionist like that person I see in the mirror? You’re always doing for other people. Take care that you don’t REALLY collapse, that would be a catastrophe.
I was pretty much the same weight all my life until the last couple of years. Too much comfort food took its toll in weight. I’ve rejoined the gym because I can swim better than I can walk or run, and it helps.
By the way, I am good at visualizing – I have already untied that boat and taken it for a couple of spins around the rock.
It’s beautiful out there!
Have a great weekend, Christy
Christy, I sympathize about trying to keep the bird feeders full. We’re going through probably close to 25 pounds of seed a week now. (Flocks of redwing blackbirds, cardinals, mourning doves, hordes of little song sparrows…)
I’ve been blessed with pretty good health once I got out of childhood {knocks wood} except for the joints issue. Glucosamine and chondroitin can be helpful, because it helps rebuild cartilage. I’ve also found that if I take either 220 mg of naproxen sodium (Aleve, but I get the store brand generic) or 800 mg of ibuprofen just before I go to bed at night I feel less stiff the next morning and my whole day goes better.
Oh, and Scottir is right about tea. I really don’t know how I could go on without tea!
Good morning Dogs! Today is my daughter’s 8th birthday, so I got up early (for a Saturday) and got bagels and a special birthday smoothie. Going ice skating later today and having a pizza party at our house. Chaos! But lots of fun.
Christy, what autoimmune thingy do you have? Drop me an email if you’re not comfortable sharing, my wife was diagnosed with Lupus a few years ago, and my daughter has been dealing with autoimmune stuff since she was born.
I also have arthritic knees and what has helped me is bicycling. Walking for exercise is too painful, inflammatory, and counterproductive. Biking is impact free and I can do it for long periods of time. The motion in the knee joint is higly beneficial and actually produces a fluid that cushions the joint, somewhat like cartilage does. I have a comfort bike with suspension seatpost and front end, which further reduces the strain of impact. In bad weather, I cycle at the gym on a stationary bike with a heart rate monitor.
I have also found weight lifting on nautilus equipment helps build up the muscle around the knee joint to take some of the strain. Improving your muscle tone (lean muscle mass) will also increase your metabolism and assist in weight control. You can bike 3 times a week or more. If you get your own stationary bike, do it as much as you like. You only need to lift twice a week. It is important to take at least a day off between lifting sessions to allow the muscles to recover.
Start gradually and you can turn that downward spiral right around.
I’m not a doctor and have never played one on TV. But…Christy, you might do yourself a favor by investigating chelation therapy for your aches and immune system problems. A lot of pro and cons about chelation treatments, but I tried it and it has worked for me.
FDL is absolutely the best site going. I can’t tell you how much I appreciate what you and your team are doing for our country.
Be well. And God bless.
Hi everyone:
I have been lurking here for over a year for the CIA leak coverage. I love this site and think you’re doing a great job on the Libby trial coverage.
I am a 51 year old mother of three. I was a total couch potato until my third child was born and had problems losing the baby weight. One of my collegues at work introduced me to weight training, which I love. I have a nice collection of weight and cardio tapes that I do at home. Christy, I don’t know much about arthritis/joint issues, but I have read that weight training is helpful because strong muscles relieve the pressure on your joints. I also do tae kwon doe-I started training because my kids were doing it. I am a green belt and if I get my act together, I will test for my blue belt in the spring.
Since I started exercising, my neck paid has gone away and I get sick a lot less often.
Dan in Canada -
Ahhhhhhh, tai chi……..bestest head & body cleanser a.n.y.w.h.e.r.e. Haven’t done it in years but finding a good sensei is on the spring to-do list.
For Valentine’s I’m giving myself an 80-minute facial at the best spa in this neck of the woods. For the price on one treatment you can spend the entire day wallowing in their hot tubs, steamroom, sauna, waterfall whirlpools or mineral/lap/contrast plunge pools. Can you tell I’m drooling all over the brochure?
Today I’m working on my spiral ring recipe notebooks & dreaming of all the spinach dishes to be made from the seeds going in the ground as soon as weather permits.
The shrub we in the south call “Breath of Spring” a.k.a winter honeysuckle/lonicera fragrantissima is putting out its first flowers. Ugly bush & insignificant flowers but a fragrance that is my favorite sense memory of spring.
egregious at 3 — I have always wanted to go to Paris, but haven’t gotten there yet. (One of these days…) I hope your mother has a wonderful trip, and finds a special place all her own while she is there — a bookshop, a cafe, a linen shop, whatever makes your mom happy. :)
No sisters or brothers — I’m an only. But I do try to think about what advice I’d give a dear friend and then try to do that. “Try” being the operative word there. *g*
Noonan at 4 — That sounds like a very lovely place. And with the apples, you’ll likely have some deer friends in the evenings. Haven’t met a deer that didn’t love apples. :)
I wish I was wherever that picture is.
Christy –
both my mother (83) and me (45) suffer from a variety of autoimmune diseases. Mine manifest symptoms in skin problems (dry, scaly, and cracking skin) that’s easily irritated. For me, one of the triggers seems to be antibacterial soaps. If I can control my exposure to them, I can generally keep my hands from developing peeling and cracking skin that’s both uncomfortable and unpleasant.
And exercise in all its forms seems to help. It may be counterintuitive, but lifting moderate weights seems to increase joint stability and comfort in people with arthritis. Perhaps having a few sessions with a trainer might be a help for establishing a sensible, repeatable exercise routine.
GTurner at 6 — Well, that’s just bout the best summation of a recipe for happiness I’ve ever read. Thanks!
After a long week of work, I need to make myself go to the gym. But I put a fair amount of time and thought into this post last night, so I’m passing along the link before I go.
I hear you Christy. I have Rheumtoid Arthritis so I know what you mean about the joint pain and a wacked out immune system. I’ve spent the last month fighting a chest cold and a stomach virus.
I was being treated by Remicaid for the arthritis and I had to stop last summer becuase my body rejected it. Evidently it had put the RA into remission because I’ve been off all the meds since June of last year. I had been on it for 3 years.
Are you aware that nightshade vegetables are a trigger in some people? Potatoes, tomatoes, peppers and eggplant can trigger the immune system to attack.
Keep a food journal (I know more writing) and see how your body reacts to what your eating. Processed foods don’t help, and make sure you drink a lot of water. I also found that chripractor adjustments have helped a lot. So has yoga.
Morning Christy,
One of the first things I do is remember that “we are spiritual beings having a human experience, not human beings having a spiritual experience”.
Hi mec! Welcome to the lake!
Ditto on your experience with weight training taking pressure off the joints. I used to walk using primarily my knees. With weight training and pilates I learned to use a whole lot of other muscles.
Christy Hardin Smith @ 27
I’m an only, too! Go only children!
I’ll second the use of close friends as sibling surrogates. Mine know who they are!
scory @ 36
Me too! Let’s hear it for the “onlies” in the group!
One of the advantages of being an “only” is that you get to pick your siblings *g*.
Great topic, Christy!
I’m going through this myself right now, complete with sore joints (from injuries & a different auto-immune disease – Celiac). I put on weight recently when pneumonia put me on my back for nearly 8 months & have spent the last year or so trying to find the energy to take it off & I think I’ve finally found something that is going to work for me – a pedometer! You’ve probably seen the recommendation that we all get 10,000 steps a day (or roughly 5 miles) so I’ve been wearing one for the last week from the moment I get up until the moment I go to sleep.
I was appalled at my first day’s reading – 873 steps (darn blogs with all their coverage of the Libby trial ;-) )but this inspired me to move more – I’m making multiple trips for things I only made one trip for (I used to think I was being kind to my poor sore joints by making fewer trips!) & adding little things like pacing my house while brushing my teeth.
I’ve only hit 10,000 once so far (a long day of shopping at multiple stores) but I’m up to 5-6,000 steps a day pretty regularly this week & I’m already feeling better. This may not work for everyone but for me, it brings out my competitive side trying to either get a bit more each day or at least not back-slide too much. My goal is a minimum of 2,500 a day (I set it a bit low so I won’t feel bad on the days I don’t feel good – it’s still way more than I used to move) though I’m aiming to walk closer to 5-6,000 a day with the ultimate goal of hitting much closer to 10,000 eventually. I do have a treadmill so that helps in winter (I’m in MA & it’s bitterly cold this week).
I’ve also found that being aware of my movement – as well as my lack of movement – has been really helpful & has also inspired me to eat better (more salads & oatmeal), though I still enjoy cookies & ice cream – I’m just eating much less of them (no clue how long this new attitude will last!).
At any rate – I highly recommend a pedometer to everyone. Moving a bit more each day is so much easier than trying to find time to go to a gym or to do a specific home workout (though I will be adding some weight work – with dumbbells – when I feel stronger & perkier).
Dan in Canada — Will take a peek at some Tai Chi. It’s very much like a mindful yoga in some ways, isn’t it? Different movement and position styles, but the same work on your core and thoughtful movements, if I’m thinking about the right type of exercise?
Forgot to mention, has norovirus been going around your states? In my area it hit 4 big restaurants. They are saying what appeared to be the flu going around for the last couple of months is really norovirus. Nasty stuff.
Waccamaw @
26
Is that the Grove Park? Sounds like a wonderful idea.
Woke up next door in VA feeling much the same (16 degrees, cracked and chapped hands, and fighting off a sinus thing :>) I also had knee surgery last year for torn cartilage and have to be careful with exercise. On the advice of my ortho to use a stationary bike, I found a recumbent bike that is very comfortable and quiet enough to use without bothering others watching TV – I use it without resistance and try for an hour each evening (I had to build up to that).
Another thing that works for me, though it sounds strange, is a deep breathing program called Oxycise. It combines deep breathing, ab tightening, and stretching and is really energizing. A couple of the positions bother my knee so I just substitute a different stretch.
Just wanted to share what works for me and to say thanks for all that you and Jane do. I’ve been following the Libby case here since the beginning and reading FDL is part of my daily ritual. Take care and hope you feel better soon.
Hi Christy,
What keeps me sane is running. I’m lucky…
I work from home and can go running at noon…
We live northwest of Boston and I lose my mind in the back woods…
My only drawback is that once a week I jaunt
with my Republican neighbor; we sometimes
end up in bloody, heated arguments…
We share a beer at the end, and magically become friends again… (most of the times)
Jack
Twisted at 22 — Your wife and I are dealing with the same thing, then. We didn’t know I had it when I was pregnant, and I’m hoping that The Peanut won’t have any issues from it. Ths far, no symptoms for her that we’ve been able to see anyway.
I’ve been practicing Ashtanga yoga for six years now. I find that the yoga high can last for several hours after the class, along with the sense of well being from such a focus on the self. I expend so much energy during the week toward others, family, work, worrying about war, and the inevitable sense that everything in the world is regressing.
One of the primary tenets of yoga is “Ahimsa”, which is love of / compassion for oneself. It is puts a maximum focus on not harming oneself, either physically (through pushing the body too hard) or emotionally (through getting down on oneself for being imperfect or lazy). Once “Ahimsa” is mastered, then one can attempt to project this same kind of love/compassion to others, including those who we think that we hate.
At the risk of sounding like a lunatic, I recommend The Master Cleanse. It’s basically a fast, involving herbal laxative tea at night, one quart of salt water with two teaspoons of sea salt (flushes your system right out) and then six to 12 glasses of lemonade a day (made with eight ounces of water, two tablespoons of fresh squeezed organic lemon juice, two teaspoons of organic Grade B maple syrup and cayenne pepper–a natural antibiotic and anti-inflammatory).
I did this for ten days. Very weird not to have eaten food for ten days but I did drop 17 pounds and at the end something remarkable happened: it was like my entire system had been rebooted.
I’d had nasty allergies since moving to South Texas and had been getting little colds every four or five weeks. Haven’t been sick once since the first of September and I feel revitalized. My diet since has been much healthier–focusing on vegetables and whole grains and fruits and much less salt. I’ve also become a whiz at organic fresh vegetable soup.
There’s all kinds of information on line about The Master Cleanse and a booklet that can be ordered from Amazon.
Other than that, two weeks ago, I initiated a zero-tolerance for snacks. I’ve been eating all kinds of peanuts and cashews and things like that–makes a big difference on the weight front.
Snowbird -
It is indeed; now all I have to do is find a bathing suit before Tuesday (everything I own being in the other end of the state). You would NOT believe the garbage that’s passing for swim wear this spring!
When are we going to get a chance to meet up in Aville? How’s your potting going these days?
Christy,
Tai Chi is known as ‘meditation in motion’. The grandson dug out
made a huge messsome tapes the other day and one is an old tai chi tape, methinks it’s time for me to review it and get to it. We used to joke it’s OMmazing.Newton at 23 — I hear you on the weight training benefits. Several years ago (and you’d never know it to look at me now…) I was very into weight training — loved it, loved pushing myself to that next level. I’m one of those “all or nothing” sorts of people in a lot of ways, I’m afraid, and easy weight training is something that I haven’t mastered as yet. Need to give it another try…
I second the suggestions for Pilates – I found it wonderfully relaxing & great for my posture & not at all hard on my joints. Maybe once I feel better, I’ll start it again – I miss it.
‘Morning, Christy. Believe me, I know just how you’re feeling.
I have juvenile-onset osteoarthritis. My knees don’t hurt any more, because I had total knee replacements two years ago. But the rest of me? Also diabetic, which makes eating and weight loss a real challenge sometimes.
Exercise really is your best friend. I’ve settled on an exercise bike. I use a low resistance, because the point is movement, not muscle development. I try for a half hour every day, and achieve 20 minutes three or four times a week. But it’s all good. It gets easier with time, and since joint inflammation is so closely linked to stress it can help bleed that off, too.
Bodily Aches and Pains are inevitable – but the suffering of the mind is optional.
One side of our mind is our impermanent body with its senses, and the other is All that there is – the perfectly peaceful spirit from which we came and unto which we will return.
While the bodily aches and pains will always be there – so, too, will the unshakeable, transcendent Peace that is our very essence. Everyone has a choice – no matter what their body’s condition.
Choose Peace and pass it on.
What wonderful ideas! Ive been walking around our back acre but its hard to motivate myself. Ive been thinking about a pedometer as I do walk around a lot working on the ceramics
Waccamaw I go to Asheville to shop and occasionally to play. We can meet most anytime. e-mail me.
Im trying to get stuff made to be ahead this summer but this 15 minute refresh seems to get lots of my time.
Christy,
Nice view of the backyard above. Where are those frozen bird feeders?? :)
In order to relieve some stress from my life I find myself turning the tv off earlier every night. I do alot of blog reading during the day at work and by the time 5:00 comes I’m pretty pissed off @ the world we live in so listening to CNN/MSNBC/et al has a tendency to be overkill. I try to walk on the treadmill for at least 30 minutes when I arrive home and then make a fire in my great room. Just staring into the blaze in semi-darkened silence for 15 minutes has a very calming affect on me. If you have bad knees then just 20 minutes of light stretching and deep breathing can help (versus an entire routine tape of yoga). Better yet, do the stretching in front of the fireplace!!
I’m invited to a pretty big party today but I’m still not sure if I will go. I know that I should but this is the first weekend I have the house to myself. My 19 year old son went to Fort Lauderdale for the weekend.
My girlfriend just built a huge home on one of the lakes in the area and just got her new pool table delivered. She is having a girl’s reunion this weekend. She’s probably over at the house right now blowing up the inner tubes and lining up the water ski’s and charging up the jet skis. All us girls raised our kids and used to spend weekends at the lake when the kids were young. Now, most of us live here full-time but some are coming from out of town. Of course, the kids aren’t invited this weekend.
I just have such a hard time leaving the house lately, for some reason.
Do you want to eliminate your joint pain? Buy a big bottle of Double Strength Glucosamine Chondroitin (500mg/400mg) at your local Walgreens. Take 3 of those capsules a day for a month. If your pain has gone away, then just take 1 pill a day thereafter. For me this stuff really works.
What do you have to lose?
- Tom
Morning everyone. I love the warm blue sea picture. We go to a quite similar tropical beach hideaway for a week or so early every summer after classes let out. I come back home and it is like I have had a blood (and psyche) transfusion. Just hot sun, warm water, white sand, hammocks, novels, good food. Perfect. Now with Jet Blue you can get to some of these places pretty cheaply; and in the summer the hotel rates are cut in half.
On what I am doing now; after reading this I am feeling guilty. As per Christy’s post at New Years I made a a couple of commitments to y’all, and have kept 2 of 3 -cutting out pastries (flour & sugars generally), cutting down alcohol). The exercise…. well the cold hasn’t helped; and long work hours and parenting needs are the current excuses; but a couple of years ago, I still ran every day. I should/could start again, but I step outside and the wind just rips through me. Ambivolent?! The dog curled next to me on the couch sure would sure enjoy it it, as would my love of 40 years this June. But then I look at the thermometer – its in the teens. {{{{BRRRRR}}}
snowbird: You do ceramics? I used to really enjoy that. Had my own kilns and molds, etc. It was so relaxing. Maybe I should get back into it.
Snowbird -
Don’t think I have your e-mail addy but if you don’t want to post it, maybe I can get from Mandrake. Is week day or weekend better for you?
Didn’t you say you do sinks & garden sculpture? Would love to see your portfolio if we can meet up.
ccmask at 56 — You should go. That sounds like a lot of fun. Whenever I’m having trouble getting myself out of the house, I always find that just doing something seems to blow that feeling right out of the water. Go and have lots of fun for all of us. :)
Watching my daughter’s “showcase” production – a budding actress she’s in her final year at drama school here in London.
And swimming and simultaneously listening to one of Wodehouse’s Blandings Castle novels. Thanks to a wonderful gadget – an mp3 player that will do the business for you in the water. I’ve always liked swimming – I’m pretty husky and that’s putting it politely – and it got me down a couple of years back when it occurred me one day, “I’ve got all this body mass and there’s no escaping it – I’m either standing with it or sitting with it or lying down with it and that’s it” – and then, I thought, “no, there’s a fourth dimension…I can be in the water with it and if not weightless well at least less weightful”. And also swimming’s good for you – the perfect exercise, blah blah blah. But the problem was, it’s a bit sameish, a bit boring chugging up and down a swimming lane. Even for one who prides h_ _ self on “never being bored when I’m around”. And whither’s this tending? Well, surely you’ll have guessed – the gadget’s made quite a difference. Beethoven, Credence Clearwater Revival, Jane Austen, Alan Ginsberg, P.G. Wodehouse, Shakespeare – you name it – I’m now in the best of company when I’m in that fourth dimension element.
Now I wonder if it would be all right to sneak in – to attach – a “rider” to this comment. I’ve just punted up onto Glen Greenwald’s site the following suggestion, written in response to his latest post about the New York Times going down the Judith Miller route yet again – the names have changed – it’s Michael Gordon doing his Judith Miller impression and Iran in the crosshairs instead of Iraq – but basically it’s the same crock of steaming fecal material. Reheated.
Here’s what I proposed.
Here’s a suggestion. Can someone in this “community” please create a website listing New York Times advertisers and subsidiaries. And with it a “searchable download” that can go into palmtops. So if I’m in a shop – or indeed online – thinking about purchasing this or that I can tap in the product manufacturer – or indeed the name of the shop retailing the product – and get an instant report back “has advertised in the New York Times”. Or “has not advertised in the New York Times”. Whereupon I’ll act accordingly.
Come on you computer whiz kids who loathe what’s going on as much as this ancient technophobe does…please get busy and help out here.
Hi,
First time post, but most appreciative of all the hard work, both on the Libby trial and the rest of your site.
I’ve been looking at Reliv, which is a nutritional supplement sold in a direct-marketing business. If it does a quarter of the stuff it’s reported to do, it’s awesome. They say it’s not a cure, just that good nutrition lets your body do its own healing.
I’ve talked with a woman who had rheumatoid arthritis, and her hands certainly support it, but has become pain-free and healthy with Reliv.
(I’m not getting anything out of posting this – just sharing information…)
Oh, and I’m on the way out the door for a bike ride for the first time in a few weeks after fighting off a cold.
Best wishes to all of you on this fine day (the Valley is going toward the mid-70’s for a high) and good luck on you various health efforts.
You’re right Christy…what time will Ned be here?
Ahh the thermometer has reached 21. Probably time to stop chatting and get going.
Waccamaw Its sukeys@yahoo.com
Thanks for this lovely chat and getting to know some of you.
OT (and I know I shouldn’t intrude on this nice us space) but having just finished the NYT, I want to let you know there is a front page above the fold article by neo-con “journalist” Michael Kaplan (the same guy who the NYT recently admonished for saying on a TV news show that his personal view was that the Iraq war was winable). So, as per Judith Miller, here he is back front and center. The piece is on how “intelligence” indicates that Iran is furnishing the Iraqi’s with the missles that are being used against our humvies. Also complaints they are supplying hezbolah. (Roll out the drum for new war with Iran).
My equally large complaint is that who are the biggest sellers of armaments to countries around the world? US and Is*ael. When the latter country furnished the apartheid gov of South Africa with arms to use against the black population, did we propose attacking Is*ael? If we are furnishing arms to dictatators around the world, does it mean that the people who are suffering the consequences of this, have a right to attack us?
How about if Congress were to put in place something to the effect that all US arms sales outside of this country have to be screened in terms of the political situation on the ground where they are being sold, and the possibility that they will be resold again. (Remember also the Is*ael use of our bombs against civilians in Lebanon?).This sort of thing directly
impacts many places in Africa as well.
OK now back to more peaceful thoughts of self-care.
ccmask at 64 — 2 pm ET/11 am PT. He’s our Blue America guest today. :)
snowbird at 65 — One of these days, if and when we ever do our weeks vacation in the mountains down your way, we’ll have to find out where you have your shop/work displayed. Would love to see some of your garden scupltures. :)
AC Hachem @62. Oh Snap! I was writing as you were posting!. Same issues!!
Okay. I am taking your advice and getting out of bed right now. But I’m not putting on a bathing suit…it’s been a very long winter and too much Mike & Ike’s. See you all later and thanks for the push!
Hi Christy! While I don’t have an autoimmune problem, I do have bad knees. There are a lot of good suggestions here – regarding water aerobics etc., but my help has come from an excellent chiropractor. I kind of blew my knees out about a year ago – could hardly walk, and negotiating the two flights of stairs in my house was a painful struggle. In addition to chiropractic adjustments, the doctor sent me to physical therapy. They started by giving me stretching exercises to do a couple of times a day, and giving me ultrasound treatments. Then they started giving me gentle strengthening exercises, slowly graduating their difficulty. That has helped immensely, as well as taking glucosamine and chondroitin. If you have a good chiropractor in your area, I highly recommend giving that a try – and exercises under the care of a physical therapist.
Good luck – and take care. I, too, need to get my weight down. You are all inspiring me to get going on this! Thanks!
Morning Christy! I always learn so much coming here about, well, everything. And if I might chime in about the winter knees … in my family we all have joint issues and what has worked best is to go off of wheat products and sugar. Depressing I know, but one can try it for just a week or two and if wheat and sugar are indeed the culprits, you’ll feel the difference almost immediately.
What happens (I’m no doctor) is that the wheat and sugar cause inflammation. As a sugar substitute you could try Stevia, much more healthy and natural.
Thanks for all you do, every day, every hour.
Christy!! No weight lifting! bad for joints – do yoga exclusively!
LoneStarLiberal @ 47 –
Thanks for the reminder about the master cleanse – I’ve done it before and it’s just what I need right now. I feel better already!
Christy @ 68 -
Southwestern NC = some of the best crafts in the country!
I offer you two beds if you can pull yourself away from the beach *g*. So many people like the fall foliage but to my mind, spring “green up” time is the most beautiful.
Good morning, everybody. Over the last two years I’m lost 100 lbs. I still have a long way to go. At 54 I finally have real confidence that I can do this.
Here’s what I learned after a lifetime of obesity, seeing lots of doctors, taking diet pills, and trying every crackpot diet under the sun:
Your body breaks down different foods at different rates. Fats and proteins take a very long time. High fiber carbs (i.e., veggies and whole grains) also take a long time to separate the sugars from the fiber, releasing the sugar to the blood stream slowly. Simple carbsor foods with a high glycemic index (i.e., sugar, refined flour, white potatoes, corn, and some tropical fruits) pass through the digestive system quickly dumping sugar in the blood stream causing an abrupt spike.
Some people can tolerate this blood sugar spike. For others, the body freaks out and triggers insulin resistance (i.e., producing insulin and flooding the blood stream with it). The insulin’s job is to remove the excess sugar from the blood stream. It does this by capturing it and storing it as fat. It does such a great job that it causes your blood sugar to drop. Low blood sugar makes you irritable, depressed and hungry. You crave food, preferably something with sugar, since your body is interpreting the low blood sugar as potential starvation. That’s why you can still crave food even though you know your stomach is full. The cycle perpetuates itself.
The answer is simple: stop eating everything that triggers insulin resistance (sugar, white flour, etc.). It sounds terrible, but the truth is, once you get it out of your system you stop craving it. You just have nostalgia for foods you associate with good times and comfort.
I can overcome nostalgia for a healthier life without food related mood swings. :)
OK, it’s Saturday morning so somebody’s got to talk recipes……
Just found several boxes of Nabisco “Famous Chocolate Wafers” at the grocery earlier today. Does anyone have a fab recipe (other than the “Refrigerator Roll”) using them?
Love yourself, Christy! Everyone uses love of others as a motivation for taking care of yourself, but you deserve to take care of yourself just because you are yourself!
Here’s the thing: schedule yourself into your (own) day, every day. Choose an hour a day at least, and MAKE THAT HOUR YOURS! Not Redds’, not Peanuts’, certainly not Libbys’, YOURS! You don’t have to feel guilty about how you spend your hour. Do something that will make you feel better physically. Work up to 2 hours a day! You can do it, and you DESERVE IT! Love you, christy!
Christy Boo, I have a knee that’s shot from dance and the best piece of advice I’ve had was from a physical therapist who told me never to wear flat shoes. I know this sounds really wrong, but a short heel makes you bend your knees so that they won’t lock. Twenty years later and I have still avoided surgery. Also, avoid any and all “immune boosters” like ecchineacea (sp?). Pilates, yoga, etc. are all great because they strengthen the core–walking on a flat surface is great but all things in moderation! Sleep, sleep, sleep…nine to ten hours a day if you can. It’s been linked to weight loss and is the only time your mind and body can repair themselves.
BTW, WHO just raised a woman’s limit on alcohal consumption to three glasses a day! I swear, life just gets better and better…
Not for nothing (hi fellow Celiac!), but you might try cutting out wheat, it’s an allergen for about ten percent of the population. Try for two weeks and see how you feel.
Be well!
We have a ton of auto-immune stuff in my family. It manifested as allergies (pollens) when we were young. I was the only one who did not have them.
All of the next generation of my family have/had autoimmune issues: asperger’s, diabetes. My sister has multiple connective tissue disorder: lupus, Raynaud’s, scleroderma, RA. My brother has been diagnosed with Celiac disease. My mother has terrible osteoarthritis.
I am taking Fosamex in the hope that it will keep me from having the worst of my mother’s health problems.
Swimming is great for arthritis, I think. My mom, who is in her 80s, swims 5x per week. She is a model of discipline, but I think it also is the thing that keeps her from giving up from the pain. She never complains about it. . .a saint.
I have total sympathy for people who have painful days and nights. It is very hard to live with it, and it is so easy to give advise.
I think yoga and tai chi are also good. Meditation may also be helpful. But I think doing something that involves discipline is great. Finding the thing that one can be disciplined about is best.
Good luck Christy. It is incredible that you keep up with the heavy work load of FDL, plus take care of the Peanut and Mr. RH. And the house and the birds and the pets. Really, you are doing a lot. Please take care of yourself.
I also have an immune disorder, a t-cell defect and have raynauds which causes my hands and feet to look dead after even the briefest outing in the cold.
I take lots of hot baths (hard on the skin but the only time I feel truly warm.) I walk on the treadmill but it kills my knees. I am stubborn. They swell the size of grapefruits…but I notice after taking a break during the holidays that they are better than before I started exercising.
I don’t have money for gyms so walking and the hand me down treadmill have to work for now. I am listening to meditational music and imagining the down fall of the Bush regime.
I Imagine us taking down his pictures and burning them in effigy. I imagine us running in the streets because we are finally free of his oppressive, murderuous regime that takes from the poor and gives to the rich. The parties and the shouting making the cold go away. Jobs, and security come back to our nation. The middle class is reborn and peace in the hands of the sane is attainable. Hope springs eternal. And last but not least, the wealthiest 2% of this nation actually decide that instead of two yachts and 6 houses, and 22 cars they might really give back to our country for the privilege and freedom to earn it.
I know there are many philanthropic folks but the statistic is that the wealthiest 2% actually pay less than 1% of their income to taxes AND charity. I remember Buffet challenging Ted Turner to give 10%. No one took him up on the offer and somewhere he has ended up giving his money to Gates. I am fearful that Buffet has been schnookered…but we will see.
Generosity and love replace greed and american becomes the great nation it once was.
To dream the impossible dream…
Oh–dry skin peeps, put your moisturizer on BEFORE you towel off. Works like a charm!
Another long-time lurker, popping my head up on a very chilly (-10) morning, here in MN. (I swear I heard birds singing!)
During a rough patch several years ago, I was on antidepressants with moderate success. Coincidentally, a friend recommended “Eat Right For Your Type” (D’Adamo) to help with asthma. That book has taken a lot of heat, but I did find that his recommendation for us blood-type-B’ers to eliminate wheat was a miracle cure for my energy level.
It’s not something I’m able to do religiously on a regular basis, but when I’m at low ebb — like when it’s cold & dark and our country’s going to hell in a hand-basket — I get serious about oatmeal and rice crackers and I feel better almost immediately. And sometimes it gives me the extra energy to step up the exercise and other activities that put me in a generally better rhythm.
Point being, there can be surprising benefits to various dietary adjustments, depending on one’s own biochemistry. A friend’s kids just did serious food allergy testing and, although they don’t have the better-known reactions (hives, etc.), certain foods do have dramatic impacts on their systems, including energy, mood and behaviors. It’s been a real eye-opener.
And as another only-child, mom of a young ‘un, I, too, find better motivation in taking care of his mama and in thinking about how I’d advise him.
Thanks, Cristy & other lakers, for all your efforts, wisdom and good spirits. This place represents the best of the net.
Correct diet and excercise are both neccesary however less work is important to me. C’mon, does all the “vital” time we spend on our jobs really make much difference? In the fifties the dubbed it the Rat Race and that really says it all.
Lost my wife of 30 years about 18 months ago and shortly thereafter had reconstructive knee surgery. Nasty depression set in, not chemical, but poor, poor pitiful me variety. Had been a runner but that’s out of the plan. Found eliptical trainer at the 24/7 health I’m fortunate enough to have very close by. A good sub. Not the same, but they have little tv’s on all the cardio equipment so I can watch MTP, OLbermann, etc while doing something positive for my bod, too. Different than your situation but potentially life-threatening – join Sheila in the great silence or move on? Don’t mean to go Lombardi on you but push on through. You’ve got more to overcome but more reason to make it than I did. Thinking good thoughts about you. Hope they help
Since my wife and I married in 2000 and started a family (with two terrific boys), we’ve slowly packed on the pounds as the daily routine and the stresses of trying to prepare meals, juggle work and raise the boys have served to distract us from taking care of ourselves. Two weeks ago I had finally had it and I just stopped eating poorly. Healthy cereal, a smoothie, maybe an energy bar for breakfast, a big salad (with a little tuna and feta cheese so it’s not completely unsatisfying) for lunch and a reasonably portioned dinner with a meat and two veg (rather than 1 starch and one veg). No junk, sweets, snacks.
I’ve lost 15 pounds and feel so much better. Extra spring in my step, lots more energy and that “cod face” as my wife puts it, is gone. Here’s the thing, for the first 5 days I was ravenously hungry all the time but after a that my body seemed to make the adjustment and now a small portion fills me up. So I guess what I’m saying is that in order to turn the corner I had to “stay hungry”. You gotta be determined and it’ll be worth it. As has been said though, keeping it off will be the test.
Also, eliminated recent back pain with a vigorous stretching on my legs and hamstrings (sitting indian-style and pushing my forehead toward the floor while my elbows slowly, steadily pushed my legs down/out). Amazing difference.
If you need motivation to change your diet and all else fails, watch “Super Size Me”.
hi-my family has had to deal with various cancers the last five years. We learned through our own research how important it is to get great nutrition and minimize exposure to toxins. One of the best vitamin lines we use is the Electriclife products. They have resolved all sorts of health issues for us. Go to electriclife.com website. Their 3 month program is very effective. For me, it resolved my arthritis and skin issues very quickly, and some other issues took longer.
Chorus.
Nola Sue: Thanks, Cristy & other lakers, for all your efforts, wisdom and good spirits. This place represents the best of the net.
I was talking to someone about the Libby(x3) trial the other night. He started that “the blogs are so uninformed” routine. I said “NO. You should check out FDL.”
For a gentle entre into exercise, I highly recommend the New York City Ballet Workout Book.
Just 20 minutes of these stretch and isolation exercises every day will give you tone, strength and energy. (For any golfers here, I swear the regimen also improves swing, fluidity and accuracy.)
And now that everybody’s great comments have reminded me about the book, I’m going to dust it off and get to it again!
If you have a dog (as I do) the best thing to do is walk that dog.
But I am also trying out a new plan to rejuvenation using the book 30 Day Revitalization Plan by Miriam Atkins. You start with a fast to detoxify, but then you continue with mediation, exercise, stretching, weights, and a good nutrition plan. It’s a very nicely done book, very easy to follow.
Also, I simply cut out sugar and that’s a big start. Now that Christmas is over and we’ve eaten all those wonderful cookies that we shouldn’t have…it’s easier to move on.
Oh, and do some word scrambles every day. They’re fun and good for the brain.
Christy –
I am fairly active generally, and I am sympathetic to the joint pain issue – I had knee surgery just less than 2 years ago for a torn meniscus.
Although the risk of osteoperosis calls for some weight bearing exercise, biking is one of the best knee-friendly things there is. I realize that it’s not practical to bike outside when it’s 10 degrees out (although I know folks who do), but come the warmer weather, that can help. Or get a good stationary bike.
Swimming is also good – I can’t wrap my head around it, but if you can, go for it.
And, as you have experience with weight training, that can certainly help. But you need to let your body recover from whatever stresses you put it under.
Someone did a study (I think it was the Swiss) that showed that squats on a 20 degree decline board can strengthen knees enough to avoid/prevent surgery in the cases of some injuries. I don’t know if it will help in your case, but lots of squats have helped me almost forget about my surgery. Key thing is proper form and, if available, a very competent trainer/physical therapist.
But really, the best exercise is one you’ll keep doing.
As for the Ben & Jerry’s, I have a nutritionist friend who told me that sugar cravings come when we don’t have enough protein to keep us goimng, so we crave a quick hit of sugar. If you eat more smaller meals with less carbs and sugar and with lean protein, veggies and good carbs (quinoa is a fave), you’ll crave less sugar, and the regular meals will keep your metabolism at a higher level throughout the day.
Getting rid of sugar and wheat entirely is good, but I’m not that strong-willed.
Good luck – it’s great when it starts to happen, you feel better and the good habits snowball.
I believe that for every LB on your frame you exert 10 lbs of pressure on your knees.
DO NOT TAKE Arthritis drugs they actually lower your immune system, (Side effects include Lymphoma)
Talk to an exercise physiologist to develop a program that will work for you.
I find Acupuncture helps with the pain, with out any drug side effects.
Like every thing else you need to find your own path for heath, hope these ideas help.
Christy way back @ 28 -
There is a 6′ fence around the apple trees to keep the deer out and dogs in (it doubles as a kennel area, I guess). We have a 6 year old Springer and a
I forgot one more thing:
I wear Dansko-Sanito clogs. Doctors, dentists, chefs (people on their feet a lot) wear them for back and leg strength. My husband had suffered for years with leg and foot pain, tried everything, and finally the orthopaedic surgeon suggested these clogs. I swear he wore them one day and he hasn’t looked back.
i have a mix of endometriosis and asthma. So that leaves me with very few choices in excercise. One thing i do need to do is to see if there is some way to start Tai Chi again. I do miss it, and i used to have a regular class in it years ago.
It’s one of those perfect types of excercise for those of us that can’t move all that fast.It’s also been done in asia for centuries by people of all ages and is probably one of the lowest impact workouts you can get–with the added bonus of learning how to focus even better on top of it.
i wish i could do it now, but the pain issues cropped up again. So i’m trying ot count my blessings even though i had to drop two of my classes this semester because i missed too much of them again. A lot of my Profs are complete a**es about time missed, even with a real med condition.
Relaxation? In this time of despair and hope?
Eating properly? When there’s no time between rushing out of the university gym and getting to the movie?
Pursuing happyness? When’s there’s work to be done?
Getting enough sleep? With all that’s on the plate?
Sigh. . . . Thanks for posting that, Christy. It’s worthwhile to ask the same question of myself, and find time to ponder your friend’s advice: “Put on your oxygen mask first.” What an excellent piece of advice.
I think I’ll ponder it tomorrow with my wife atop skinny skis, in the mountains, over newly fallen snow.
Kick . . . glide . . . kick . . . glide . . .
But meanwhile, there’s reading to do, such as this from TIME magazine:
Feith Takes the Fall
After discussing the character assassination work of Scooter Libby, the disastrous war under Gen. George Casy, and the lying alternative “intelligence” reporting of Douglas Feith, the TIME essay says this:
George Bush and Dick Cheney, you are not even carpenters. You are a wrecking crew.
Penultimate
There. I finally used it.
Jay @ 86
Hi Jay – I’ve had horrible back pain from a twanged muscle? tendon? something? for nearly 3 years now (it feels like a charley-horse running down my back into my glutes). I’ve been stretching all along but perhaps not as vigorously as I should – I’ll try your version & see if it helps (I sure hope so!). Thanks for the idea.
…too cold to function in DC as well – start a warm fire and listen to these to warm the spirit…
Extra Extra – “Listen” All About It..!
Scooter Libby’s Complete Grand Jury Testimony
Eight 1 hour segments
http://patrickjfitzgerald.blogspot.com
What I try to do;
My right hip, both feet lumbar vertabrae and neck are all arthritic. Generally, if I feel pain in one of those places, I stop feeling it there when it gets worse elesewhere. Big barometric pressure changes are always unpleasant – have been for about 20 years. I thought they just hurt, but as part of my shoulder surgery package over the holidays, the Doc looked at those places. He’s going to refer me to an arthritis specialist.
Even though I’ve been an expert snorkle and scuba diver for over 40 years, I dislike swimming. For me exercise has to be low impact – bicycling, in-line and ice skating and chores around the homestead are most of my exercise. That and summertime hiking. I’ll be able to get back to skiing by next winter.
Substitute fish like salmon or surimi as often as possible for red meat and avoid ALL foods processed with corn sugar and corn products. Only eat corn as such – corn kernals or corn meal. And substitute brown rice for processed rice and whole wheat flour for white flour whenever possible.
How to stay healthy?
Go vegetarian. Go organic. Don’t overeat. Drink adequate amounts of water. Get adequate sleep. Be active.
Of course, there is no magic recipe. Everyone is different, but we don’t have to insult our bodies with the fatty, chemicalized, over-processed, over-packaged, mega-corporation supporting, planet-unfriendly foodlines that fill the supermarket shelves.
Hi Christy,
My wife has Lupus. It emerged 18 years ago during her first pregnancy. Unfortunatly it got worse with each of the next two kids. She survives with long walks with the dogs. She uses golf gloves to avoid the friction from the leashes. She also has pain that moves around her joints, not always the same place. So far she has avoided painkillers by a combination of red wine and reducing stress.
Yoga was a very good exersize for her, but it had to be planned so that she could rest afterwards.
We’ve arranged our family life, so that she can do the things she wants and needs to do to maintain her self asteem, and she has learned to say – no – to a lot of the things she used to do socially, like involvement in community and school projects.
Living with Lupus is an art. You have to find the right balance of what you want to do and what you are able to do. The key is reducing stress.
My sister has other autoimunne problems. She gets very good exorsize at a place called Curves.
Take care of yourself. The peanut and Mr. Reddhedd are not the only ones who care about you. Your FDL family cares about you too.
witchywoman @ 76
This is true and excellent advise. Difficult like quitting smoking, but in combination with exercise it is the most effective answer.
Diet pills (though not healthy) when used in conjunction with a healthy diet devoid of white bread, will indeed jumpstart a healthy lifestyle.
My life story..After getting married, I had 3 babies (happily) in 5 years. The next ten years were fillied with health issues. I look back and think that it was the demands of having 3 little ones to look after. The amount of stress in our lives cannot be overlooked when it comes to our health.
These are stressful times. And you, Christy, realize it more than most. I’m no one to preach since I devour all the bad news of our day, and then either rage internally or go into a slump. So, I have no advice but wish you the best and will keep you in my thoughts
In 2001 I had to curtail a 25 year career as a poker dealer due to persistent pain in my wrists and hands. It was diagnosed as a repetitive stress injury, and luckily Worker’s Comp was at the time good here in California (pre-Arnold, of course).
My wrists and hands continued to give me problems even though I wasn’t working.
The regular MDs said the problem was in the wrists; the chiropractors said that the problem was in my neck (two herniated disks); and an elderly Chinese acupuncturist told me the problem was in my kidney (”The chi in your kidney is weak but it won’t show up on x-ray,” he said.)
I went with the chiropractors, because that treatment helped the pain the best, although it persisted.
A year ago or so I tried an experiment — I quit eating RED MEAT.
Presto! Within a week my pain went away. I hadn’t been able to do a push up since 1999, and now I can get on my face and give’em 25.
The acupuncturist was correct. Somehow, digesting red meat taxes my internal organs, which in turn has an impact on the alignment of the bones in my wrist.
fwiw…
It’s white flour that I try to avoid, and that sneaky habit has the added benefit of excluding sugar with it. Whole wheat tortillas manage to make burritos feel virtuous, so I allow myself a white flour one when I want to feel sinful. It’s an 80/20 thing. I’ve also started taking essential fatty acids, and I think that they help me feel a little more calm and focussed.
somethingsrotton:
That’s very similar to living with endo too. You start reducing what you have to do in order to rest a bit more. If i ever get enough money together, i’ll get a look at Curves. As long as it has fairly low impact workouts, it just might work. Instead of being doubled over in pain from too much exertion. Glad to see her living happily!
What is up with so many women today developing autoimmune disorders?
I have autoimmune thyroiditis and dermatitis and my daughter has had autoimmune dermatitis since birth. And now I read so many women in this thread with autoimmune disorders . . .
I have been taking Omega3 fatty acids (fish oil tablets) for many years and I do think that it helps (particularly for the skin and dry eyes). There are many studies that do find that Omega3 fatty acids are beneficial in the treatment of inflammatory conditions.
Exercise (mostly stationary bike), rest, lots of fresh fruits and veggies and the Omega3s seem to help.
Take care all.
I suffer from chronic depression and bi-polar II disorder. It is nearly impossible to maintain a sense of peace or emotional stability for any extended period of time.
I find however, exercise is essential to helping me stay “up.” I am also working on more cognitive approaches to dealing with my depression and mood swings, reaching out to others, instead of obsessing about my own misfortunes and the frightening state of the country and the world as a whole. Sometimes, it just seems too overwhelming to crawl out of my hole and reach out to others. But it’s essential. Even when your heart’s not in it, it’s a good “practice exercise” for the mind and soul that often manifests itself in positive ways you just can’t see at the time, when you are in that deep, dark hole.
Again, I think I need to really push the exercise thing to the next level because it just helps so much. I think to more I do, the better I feel. During this time of year, though, it is certainly more difficult to do.
However, I was excited to find out from my software developer friend that the Eastern Standard Daylight time change is being moved up to March! Longer days just around the corner. Yay!
Of course, FDL has been a wonderful outlet for my political frustrations and an excellent source of information and inspiration and I am grateful for this exceptional blog!
My family is another that has a bunch of auto-immune-related problems. Several of us with psoriasis, nephew with Crohn’s, sister with arthritis, mother died of complications from Wegener’s, and on and on.
My psoriasis appeared when I was 26 and pregnant with my one and only child. That’s been almost 30 years now, and at times early on with it I was suidical because of the pain, itching, lack of sleep due to the pain, itching, and so on. I tried all the usual treatments, with the exception of the drug/light box, as it had some pretty nasty side effects. An acquaintance at work who also had psoriasis mentioned that she was going for acupuncture and that it seemed to be working. This was back in the early 80s, when alternative medicine wasn’t as accepted as it is now. I didn’t care. I would have tried drinking warm cat pee through a gym sock if it would have helped. I really didn’t think it would work, and kept thinking so right up until the psoriasis disappeared. Maintenance treatments kept it gone.
Unfortunately, my acupuncturist retired, and I needed to find someone else. I went to a different acupuncturist, and had similar success with the needles, but he was more into a whole body treatment, and told me that refined flour and refined sugar are toxic to the body and can cause auto-immune disorders like psoriasis (and I’m assuming other problems).
Anyway, I then starting seeing an Ayurvedic doctor here in Virginia. Ayurvedic medicine has been around for thousands of years and uses specific herbs, food, exercise recommendations, etc. to deal with various whole body problems based on your specific doshas. Very effective, and might be worth investigating for your issues.
Incidentally, I lost 42 pounds over a period of about 5 months by just cutting out sugar. I wasn’t expecting that side effect, but it was certainly welcome.
Christy,
You’ve been given lots of great advice on exercise and other home treatments, and I hope you find solutions that work for your condition. What I can tell you from my experience is that the only thing that has kept me exercising on a regular basis are my dogs. They are able to tell time and give me no peace until I take them out for a walk. I’m also glad afterwards that I did. Of course, dogs are a commitment and you may not need another of those
B
SadieSue,
One minor adjustment to the stretching advice, it’s not actually indian-style but close. Don’t cross your legs but put the bottoms of your feet together for the strecth. Twice a day coupled with thorough leg stretches and I was able to eliminate the pain in no time, chiroprator be damned.
Jay @ 84
I’ve dredged up the old saying: “It’s a jungle out there.” For the defenseless, that statement rings truer than ever.
Let me add this. My mother, who always had problems with arthritis, became nearly incapacated after my fathers death. She saw an endocronologist who prescribed, among other things, testerone. 10 years later, she is now better than she has been. That’s not to say that her arthritis has disappeared, but she is able to do anything and go anywhere she pleases.
As a footnote, she also remarried
Somethingsrotten @ 102
My sister and my Weight Watchers leader both swear by Curves. I haven’t tried it, but I do go walking or hiking with my kids every chance I get. (Down 35 pounds so far!) It’s easier to do in the winter here (Phoenix). In the summer, we only have a hour or two in the early morning before it gets unbearable. I also love riding my bike, but I injured my back a few months ago, and bike riding makes it feel worse.
One thing about weight loss: if you’re doing it right, it’ll probably take longer than you want.
Christy: I so know what you’re going through. I’ve had Addison’s disease for nearly 18 years and was diagnosed with lupus last year. Finding a balance between the two has been a real struggle. What works for one tends to cause a backlash in the other and stress aggravates both. Add kids and everything else into the mix…
Exercise in most forms is out for me – nearly 20 years of steroids does not do good things to your bones and muscles. Yoga and swimming, and walks when the weather’s warm enough are pretty much it. Doing laps is not only great exercise, it’s a great way to clear your mind. (And it’s non-impact, so great on the joints.)
Being “selfish” has been my biggest challenge, and has been the most help. As hard as it was at first, I stopped saying ‘Yes’ reflexively to the bake sales, the cookie committee, the Easter candy drive, etc. The ‘I’ll let you know tomorrow’ line has been a huge help, letting me reserve my energy for the things I really enjoy.
Wes @ 85:
(((Hugs))) I’ve never been in your situation, but you are taking positive steps.
My sister lost her husband 2.5 years ago, when he was 25. She’s spent nearly every day since trying to forget her pain using various chemical means, and several times attempting to join him. I have custody of her two children (ages 10 and 4) because even they aren’t enough.
I hope you can keep finding reasons to stay on this plane, even if it’s just to see what Olbermann’s next ’special comment’ is.
Egregious: thanks for the welcome.
and I would like to chime in that this community of commenters is a diverse, amusing and clever bunch. As much as I have enjoyed the work the FDL crew have been doing on the Libby Trial, I have equally emjoyed the commentary.
Tai Chi?… well, for me, a heavy-set middle-aged man with borderline diabetes it provides a model for stretching, breathing and tempering the stress in my life. I was fortunate in that I met a teacher who also taught kung fu and counselled me in how best to proceed. I have been at it for a couple years now and I still waddle about like a club-footed water buffalo. in tights. no. don’t let your inner eye dwell on that. But it has been a great benefit in simply giving me a baseline to check if I am actually correcting some aspects of my lifestyle.
As mentioned, I used to drive truck – long-haul – and my health suffered. I tried shedding weight thru diet pills – and the weight came off but the bad habits hung around. And after almost putting myself in the hospital thru poor practices, I found myself casting about for a better option. Now, when I hear people talking about ‘better living thru chemistry’ with regards to losing weight, I am apt to mention something I heard on radio – A doctor was asked to comment on a newly released diet pill… the doctor said it would be very helpful if you put the pills in your pocket and took them for a couple long walks a day.
Oh, lord, I almost forgot. HORMONES, hormones are contributing to my misery. PMS is just 1 to 2 weeks of hell, pure misery and uncontrollable anger & frustration (which I never project onto others, however) every month of my life. So that’s half my life right there.
OT, but really cool:
Buzzflash, which has pointed readers to firedoglake very, very seldom, has an excellent review of Marcy Wheeler’s book up as a lead at their site. They just put it up about 25 minutes ago. I’m reading _Anatomy…_ What a great book!
martial arts.
as a woman who never did anything like this until after my second child, I was surprised how much I love kicking butt.
It’s the best stress reliever ever, and when some administrator at the hospital starts trying to intimidate me, I can look at him and think “hmmm, I could take you”
We have a fresh thread from eRiposte this morning — a continuation of his fantastic series on the Niger documents and related topics. But feel free to hang out here as well — PUAC stays open all day. :)
On the subject of dry skin, you should do more than lubricate on the outside. You should also make sure that you are consuming essential oils like olive oil, fish oils, and flax seed oil. Your body needs its lube on the inside, especially for joints and organs.
I buy a $15 bottle of organic flax seed oil from the health food store (keep refrigerated). I take two tablespoons a day, and find the taste to be quite nice. For I side benefit, it will also greatly help cholesterol levels.
Organic George @ 92
This is a very real concern. With RA you have 1/3 greater chance for Lymphoma, and the drugs increase it to 2/3rds. I have to say this, the drug I was on gave me use of my hands back. I’m glad I’m off it.
I switched over to a more holistic approach to living in the 3 years I was on it, and I do believe that was instrumental in putting my RA in remission. Going forward I’m going to use accupuncture as well.
My rheumotogist’s solution when my body was rejecting the drug Remicaid was to push my immune syetm down further to see if I could continue to tolerate it. My solution was to walk away from him.
Christy,
I think that your long term solution is to have a gym at work. It just so happens that the House of Representatives has a very nice facility all ready and waiting for you.
Thad
I think the Obama announcement is coming up.
I too, suffer with a chronic issue–celiac, and a crappy immune system leading to joint pain and fatigue among other things. Over the years I’ve completeley cleaned up my diet. I eat fresh, organic, low glycemic. low fat. I lost that excess over-40 weight by following The Fat Flush Plan and I basically continue to follow the maintenance phase 3 of that. I also find that glucosamine, chondroiton sulfate helps for joint pain. Epsom salt or dead sea salt baths are great. (Dead sea salt is more energizing.) Tai chi, chi gung, yoga and meditation are mainstays. Brisk walking helps. And finally, body work and healing are essentials that have helped me enormously.
Oh, and Christy, I forgot to mention the good old Neti pot to help cut down on the respiratory difficulties. You can get them online. Fill it with warm water and pure sea salt, stick the spout in one nostril with your head tilted to the side and let the water run up one side of your nose and out the other. Then refill the pot and do the other side.
This keeps your nasal passages clear of bacteria, etc., and enables the little hairs to do their job of keeping the nasties out.
Somethingsrotten @ 102
Red wine? I’ve always wanted a reason to drink! *grin* Does she just have a glass or two a day – or enough to make the pain go away? (Which, in my case, amounts to the same thing.)
Interesting how many here have had auto-immune diseases crop up during pregnancy. I was diagnosed with Addison’s during my second pregnancy. The lupus showed up during the worst year I’ve ever experienced, but they claim that those with one auto-immune disease will almost always develop another.
Richmond@69
Same issues as in come on in, the water’s and word’s (or music’s) fine? Or as in, let’s all get together and “Lilliput” the New York Times?
Or both?
dannyM @ 122
Yes, this is important. I take fish oil which is supposed to have many other benefits as well. Supposedly, it’s good for memory and concentration as well and I sure need help with that one.
Also, probiotics and barley capsules are wonderful for digestion and are great at helping to expel the toxins we take in every day from the environment. These toxins can really make you feel bad both physically and emotionally.
PA lady –
You’re right, it is interesting how many women here seem to have developed auto-immune disorders during pregnancy. Gives a whole new meaning to that whole “foreign body” concept, doesn’t it?
Not for nothing, since I know nothing about the subject, but I wonder, since I had A positive blood and my son was born A negative, if that has anything to do with things.
So much we don’t know. Twenty lifetimes wouldn’t be enough to get to it all.
Hi Christy and all,
Ouch, sorry about the knees and joints Christy. A few years ago I started getting arthritic pain in my hands. My naturopath recommended “fish pills”, omega 3, about a gram a day. It has helped enormously. It’s also wonderful for skin and hair, and lowering LDL, the bad form of cholestrol.
One of my daughters gets chapped hands in the winter, regardless of the warmth or thickness of gloves and mittens. We’ve tried everything and found that Neutrogena makes a cream, I think it’s Norwegian Formula, that is truly miraculous.
I was a serious tai chi practitioner until my twin daughters were born 11 years ago. If you find a good teacher, practice properly, pay attention to body alignment, it will improve joint function. It is remarkable how much you can heal your own body, by being attentive. Upon regular practice for a half hour a day, you can begin to move the synovial fluid to lubricate your joints. (Sounds crazy, but it works!) In addition you get your movement and meditation in at once. Although, I always found a brisk walk before practicing beneficial.
But if your knees are bothering you, start slowly, just a short quiet walk. And I always find going out early before anyone else is up to be more effective in the getting it done department. Otherwise it’s just too much fun to sit around the kitchen table with the hubby, kids, and dog to go out on a cold winter morning.
Be gentle with yourself. In Wu Tai Chi there is a 70% rule. Never do more than 70% of your capacity and you will always have something in reserve and more to give next time.
Jay @ 111
Jay – That’s the way I do all my “indian-style” stretches anyway as it really reduces the torque on my knees but thanks for letting me know that I should do your stretch that way, too. As soon as I can tear myself away from FDL this morning, I’ll get stretching. Thanks again for the advice.
And thanks to everyone in the thread – I’ve really been inspired by everyone’s ideas/suggestions (though since I am completely gluten-free [Hi back at you to my fellow Celiac], the idea of adding any further restrictions to my diet is too much at the moment. Right now moving more & being aware of what I eat is enough.).
SadieSue @ 39
I gave my pedometer to a friend who wanted to walk more as exercise. He is 67 years old and was in decent shape. After only a few months of adding extra miles of walking to his routine (he walks 3 to 5 mils a day), he lost over 10 lbs. and says that he feels better than he has felt in years. He just signed up for a yoga class this week, to add stretches to his exercise regimen. The walking and yoga are two excellent, low impact ways to improve fitness.
Somethingsrotten @ 102
Since Curves has come up a few times, I thought I’d mention that it’s owner is in the Tom Monoghan (Dominoes Pizza) class of wingnuttery – see here, for example – so while I appreciate the ease of getting into it, Curves doesn’t have anything you can’t get from a good gym with competent trainers that isn’t trying to roll back women’s rights to, um, Taliban-type levels.
Morning everyone.
Agreed. Great topic!
Christy. I’m sure I join many others in wishing we could send hugs and good thots thru the toobz and just make those aches go away. Sometimes life just isn’t fair(!)
My problem was Lyme, contracted at age 21, years before they even named it, much less had a clue how to treat it. It came and went over the years, probably somewhat like lupus, & I now have artificial knees (sorry – more than you wanted to know…)
You having a young child, and being so busy otherwise also, I’m going to join with Beth 52 on some of her suggestions. Movement is really beneficial, but overdoing on the weight-bearing exercises is probably NOT such a good idea. I’ll bet you get plenty of that tw’ tending Peanut and bird-feeders.
Exercise bike is good (set for little or no tension).
Simpler still, lying on your back & cycling in the air does much the same thing for you (make sure to put hands flat under hips, palms down, to avoid back strain). If the legs get tired from this, remain on back & fold legs with knees up under chin, hold in place by wrapping your hands around them so there’s no tension in the legs, & just lie there looking like a grumpy caterpillar for minute, & the muscles should ease. Then go back to the exercise, or just quit for the time being. Just don’t overdo. NOTHING but NOTHING ruins a good exercise program faster than straining muscles so you “hurt” as a result. The better approach is to sneak up on the problem, and ease into a routine. If done right, you should feel more like exercising each succeeding day, not less.
Another really simple exercise for the aching knees, is – sitting down, or lying on your back with knees bent & feet flat on the floor to start, then simply doing lower-leg lifts. (i.e., lift lower leg till leg sticks out straight, then return to starting position, repeat a bunch of times, basically keeping the leg in motion slowly up-down-up-down) That was always a favorite of mine at the end of a long day – amazing how it eased the knee aches. It also strengthens the quads.
Don’t do ANY exercises till it hurts. Even Jane Fonda now admits she was wrong wrong wrong with that wretched, “go for the burn!” business! If it hurts, stop. Resume when it doesn’t, or quit for awhile & resume later.
You might find water exercises in a warm pool just heavenly. Again, there you’d get the motion and moderate muscle tension, and plenty of gentle but effective exercise, and you’d avoid the weight-bearing aspect that’s sooo hard on the knees. Sometimes a local hospital will have suggestions for where to find such classes. They are highly recommended for all types of arthritis, by docs & physical therapists I’ve talked to.
Last but not least: the dry cracking skin – ouch! My hubby has that every winter. He switches to “Oilatum” soap when cold weather comes, & it seems to help a lot. Should be in supermarkets & drugstores.
P.s., when searching for a good soap, don’t fall for the ads touting coconut oil-based soaps – I’ve been told it’s horribly drying to the skin, even though the “idea” of it sounds so exotic and soothing, thanks to marketing spin.
Thanks for all you do for us. Wish we could do more for you, sigh. ;->
Oops, one more thing! (some people call me Colombo, sigh)
Our grocery store has initiated the most wonderful little thing: germ-killing moistwipes container right there by the grocery carts, so you can grab a wipe and swipe the cart handle before grabbing where all those coughing/spluttering/sneezing other folks have just laid down nice colonies of badguygerms.
Suggest your favorite store do the same(?), or simply carry your own moist-wipes with you.
I know. That’s not going to stop Peanut & Mr Redd from bringing those pesky colds home from pre- & big-guy- school, but it might help.
{{{{{{hugs}}}}}}
Good Morning,
I too have found that swimming has been good for loosing weigth when joint pain prevents other types of exercise.
Christy,
Where was the photograph taken ? It looks alot like the coast of Northern Queensland in Australia.
Best,
MHD
Christy:
Would you have the comments section draw up the deed to your house? If you don’t have a rheumatologist, get referred to one. Some people do OK on nonsteroidal antiinflammatories like Voltaren (not for people with allergies to the aspirin family of drugs). I’ve heard good things about water aerobics (less pounding on the sore parts). Chelation therapy, except for heavy metal poisoning (chewing on paint chips lately?) is a total fraud and has killed people. There is one glimmer of truth in some of what the faddists are saying: the typical American diet is way high in calories of all kinds, and you can do with a lot less in the way of concentrated flour and sugar based products. For some people, this is very difficult. And as for vitamin supplements, even more nonsense.
I suspect that there is more nonsense in the popular literature about the immune system than anything else right now; don’t take any of it seriously — it’s just the faddist buzz word of the moment that the supplements industry has glommed onto. Or to put it another way: If your immune system is attacking some of your tissue, why would you want to make that effect stronger, which is what the supplements industry is always promising people. Luckily, their claims are baseless anyway.
Oh, and Christy.
I heartily second EVERYTHING Bob G at 138 says!
Thank you for tuning up on this subject, Bob.
Christy, I empathize about your knees. Mine are severely damaged. The pain and loss of mobility they cause me are probably the defining factor of my daily life, and may well remain so for the next 40 years. Knee replacement surgery is inevitable, but must be postponed. My orthopedist sent me to a physical therapist, who prescribed exercises to be done in the pool. They have changed my life. It’s inconvenient, but these exercises are the only thing that makes my knees feel better. The stationary bike (prescribed by the phys. therapist) gives me non-impact exercise, and as somebody noted above, it also helps to pump out inflation from the knees.
Taking out time to look after your health is not a mere option. It’s a necessity. I hate all the exercise I have to do, but if I don’t want to end up in a wheelchair in my last 20 years, I have no choice. So I watch DVDs while I’m on my bike, and I go to the pool 2-3x a week. I’ve made a bunch of dear friends there, doing their water aerobics. They have joint and health problems, and they swear by the water.
Your doctor should be able to prescribe a good physical therapist for you.
With Lupus, skin and cold just don’t go together. A little advice; avoid moisturisers creams that contain a lot of water. Freezing skin is no fun. You have to find some cream that is not too oily either, because the skin can’t breath, and you can’t wear anything.
We don’t live in the States, so I can’t recommend any creams, but Lupus Foundation of America, or your local chapter, should have some information about good moisturisers.
Bob G at 138 — I do have a wonderful rheum, and follow her advice regularly. What I was talking about this morning was more in the way of additional steps — better diet, light exercise, healthier this and that. And it sounds like a lot of readers are asking themselves a lot of the same questions that I’m asking for myself.
There is a magazine called “Living Without” (oh well), and it is very good for recipes for home cooking without flour and other allergens.
I hear from a lot of people that flour is an allergen for many people. I have cut down on flour, and I think it is better for me. Toast used to be a major food group for me.
Our society/culture is breeding autoimmune illness at an alarming rate. Just yesterday, the news of the increase in autism. . .it is epidemic. Cannot be explained by genes, that takes more time than can be explained by what the increase in numbers says. The idea that doctors are just diagnosing it more just does not make sense.
You might want to consider this Cozy Foot Rest Warmer-Safe Radiant Heat for Home or Office: http://www.safetycentral.com/cofowasalowv.html
The foot warmer can be angle-adjusted and might make for comfort in your knees in a small way. Also, in hobby shops you can find gloves without the finger tips. These might be nice to wear while typing. I find that if my feet and hands are comfortable, it goes a long way toward my general sense of well-being.
I would also recommend your buying a Nintendo Wii Game player. The sports package included contains tennis, baseball, bowling, boxing and golf. I’ve never played electronic games before, but love this one with a motion sensor in the remote. These games encourage some movement and interaction as if playing the actual game, but are always only a click away. The peanut would love it. (You can share a remote for some games, but will likely need 3 of the 4 remotes possible for your family.)
Hope you feel better.
Christy – about being cold when you are outside – living where I do, staying warm is something I do know about. Layers are your friend. A sweatshirt is not going to do it – try a fleece under something that will cut the wind. Also silk long underwear under your jeans or what ever don’t add bulk, but that extra layer really helps. And don’t forget some kind of hat – you lose a lot of heat through your head. People from warm climates (and I consider yours a warm climate!) aren’t used to the cold but also often don’t know how to dress for it either.
I’m probably lost in EPU-land here, but thought I’d make these suggestions anyway.
Fern at 145 — Thanks. Actually, having gone to college in MA, I learned early on that layers were my friend. But I do appreciate the advice.
Silk is a must in winter. remember, cotton kills
I wonder if the increase in asthma, autoimmune illness, autism, etc., could be linked to the hugely increased intake of preservatives, artificial flavors and colors, and junk food in general. When I was a kid (61 now) food was still seasonal, and if you wanted to eat you needed to cook. I’ve almost never eaten “corporate food,” i.e. McDonald’s, Burger King, etc. Maybe it’s just a coincidence that I almost never get sick.
Good Morning Christy-Good Luck with the BB game. UCLA needs a little payback, pac10 quacker-backer here, delievered WV style. I’ve communicated to you before about them adulterated dairy products so won’t get preachie. I’m in my mid-sixties and have been managing menieres for awhile and through bad luck or stupidity have in the past healed(mostly) over 30 broken bones, starting with a head break at around eight. Found FDL when my knee blew two falls ago and hung out ever since. My SO of a quarter century plus has been my anchor and led by example doing daily yoga and gradually changing my diet over the years. I didn’t take to the yoga but what can you do about the diet and exercise helped get me where I’m mostly fine and certainly thankful for her contiuing love and patience. It also helps to have a friend who owns and runs a desert hotsprings. Please treat your self to some alternative medical paths to see which suits you best. My best always, *ilbo And thankyou again and again and again.
new thread, folks
Mornin, this is sure to be EPU’d but still feel the need to share it. In my 20s I was an idiot and spread fertilizer without gloves. My hands would get so dry in the winter that they’d crack and bleed – whether I went outside or not. I put lotion on all the time.
For XMAS this year, my wife got me “Burt’s Bee’s” beeswax and banana hand cream. I put it on at night with the cotton gloves. It’s fantastic. No more dry cracked hands. Don’t have to lotion up all the time either.
Didn’t mean to tell you things you already knew! But the mental picture of you outside in the cold in a sweatshirt was too much for me!
Witchywoman @76 -
Congratulations on that much weight loss! I’m always so thrilled to hear or read about that kind of success, as my oldest brother died from obesity-related heart disease. He spent all his adult-life struggling with diets and never knew what normal movement and appearance felt like.
Also, thanks for detailed reminder about sugar/insulin/wheat, etc. Your words are really motivating me alot this am, as I have a history of hypoglycemia.
Mandrake, if you’re still reading: years ago, I discovered that eliminating wheat from my diet (tricky to do, trust me) completely rid me of the rapidity of thought that comes from bi-polar problems (me too, btw, on that score). Also, since you mentioned PMS: I’m convinced that for myself anyway, the suffering greatly reduces and goes the way of the hormones (as in bye-bye). Also, way back when PMS could still be a nuisance, I found that chewing Dong Quai root (yes, it’s bitter) worked miracles. The powdered stuff in capsules doesn’t do it, though. Good luck!
After a bad case of asthmatic bronchitis six years ago, a friend who is into Chinese medicine recommended that I take the immune booster Astragalus. It is packaged by “Nature’s Way” who has a good reputation for consistent herb strength. I take 2 in the AM and 2 in the PM. Haven’t had a cold or any type of virus since that time. Knock wood.
I am retired now and since I got my hip replaced, I work out with a trainer twice a week doing free weights, some Yoga, the ball and some machines after 30 minutes of walking fast and uphill.
All this seems to have strengthened my immune system, helped me to keep off and loose a little more of the 50 pounds I have lost over the past five years and firmed lots of the dropping skin and cellulite.
I’m doing volunteer advocacy work with foster kids and the court (CASA) which I love and have stopped teaching at the University. Life is much more calm, cool and collected than it ever used to be with my workaholism behaviors.
There actually are a few benefits to aging!
Are you still around Christy?
My husband has several autoimmune diseases which almost killed him a few years ago. Remicade saved his life, even though he doesn’t technically have Crohn’s or Rheumatoid Arthritis, which is what it is usually prescribed for.
After the worst was over and he stopped Remicade treatment, he was left with knee pain. A year or two later, a surprising thing happened. We finally found a good doctor to handle the thyroid component of the autoimmune problems. He began taking the T3 thyroid hormone. Totally unexpectedly, the knee pain stopped.
We’re in the Harrisburg, PA area, so not totally out of the question if you’d like to consult with our fantastic doctor. Email me if you’d like the info.
On a lighter note, I used to have problems with painfully dry skin during the winter that no lotion helped. After much trial and error, I discovered that A&D ointment (not the cream, and yes, the stuff for baby bottoms) completely solved the problem. Even better than the vaseline suggestion above. Cheap and effective!
Two more things: I exercise at home. I hate the cold and know I won’t go to the gym during the winter months (which I consider to be Nov.-March). Since I live in a tiny NYC apartment, I limited my exercise to working out on a mat. Some stretches, crunches, leg lifts, etc. I wanted to add something aerobic and decided to buy a waterrower. Cost about $1,000 (cheaper than one year’s gym membership) and it was money well spent. Low impact for the joints and I just love it. After I am done rowing, I feel like I had a long stretch. You can check they out here: http://www.waterrower.com. The prices from the company are a bit higher, but there are secondary sellers who offer discounts (if anyone is interested, e-mail me and I’ll send you the information from the place I bought my rower from).
As for dry skin, my sister-in-law does the spa gloves/moisturizer routine at night. I bought her a shea butter moisturizer from L’Occitane (you can buy from them on line). She swears that it is the best moisturizer out there.
Good luck and I hope you feel better.
CatStaff @ 131
Exactly what I was thinking. I don’t know much about it either, but it’s always possible. I’m O and my kids are as well, but I also wonder if it’s something with the other half’s DNA?
Bob G @ 138
This is sort of a good point. I tend to be cautious of anything that has only anecdotal evidence. I’ve had Addison’s long enough, and fooled around with the dosage enough that I know exactly how much to take depending on what my day’s going to be like. My endocrinologist doesn’t like it, but he has had to admit that it works…for me. Am I saying everyone should do that? No. But, for those attuned to their bodies and what affects their disease, it might.
Some natural treatments work, however. My step-dad started taking cinnamon a year or so ago after reading Dr. Gott’s column. Within weeks, he no longer required insulin, and within months he was eating a more-or-less normal diet with no sugar spikes. (He still tests every day.) He also dropped about 65 lbs, and his cholesterol reached normal levels.
Also, Vicks Vapo-Rub (or any generic version) really will cure athlete’s foot.
Hi Christy,
Autoimmune unfortunately runs in my family – my dad had Rheumatoid Arthritis and was doing so poorly they sent him to Yale New Haven for gold treatments. He was one of the lucky ones and it put his RA in remission for the rest of his life.
My youngest was diagnosed with SLE at 17 and has been taking some heavy duty drugs since (Placquinil, Mobic) which have also put her lupis into remission. She is, thank goodness, a happy, healthy and active college senior. I am so greatful that there were drugs who could help both my father and daughter live normal lives.
Anyway, I read French Women Don’t Get Fat, (the secret of eating for pleasure) by Mireille Guiliano this January and I highly recommend it. Although it is focused on women’s relationship with food and exercise, it is anything but a diet book. It’s basically a book about living well and enjoying life (and includes amazing recipes).
Her book was so well received that she wrote a second book, French Women For All Seasons, which is also wonderful. Not only does it include recipes and her recommendations for sensible, mindful eating, she also discusses wines and shares her preferences, gives recommendations on ways to wear scarfs and discusses her love for chestnuts (you’ll understand when you read it).
What I have done to stay fit is a little extreme – I bought a fitness center last summer! (Long story short, I was a gym rat for years, then an instructor, and finally bought a little independent place last summer. A lot of this was fueled by my mother’s and sister’s obesity, and then my sister’s death from lung cancer two years ago)
There are lots of great ideas about exercises Christy can do without stressing her joints too much (Tai Chi, swimming, weight lifting, cycling).
But what I see as the biggest obstacle to exercise is getting yourself to do it! Many people have an internal dialogue that goes something like this – “I should exercise today, but I should have exercised yesterday and didn’t, and then I ate too much, and now I weigh too much and I look fat, and I’m so uncoordinated, and I’m so out of shape that I won’t be able to keep up” etc. I often say that the hardest part of a workout is getting yourself to the gym, especially if you’ve got all these messages jumbled up in your head.
Here are a few tips to help you get going. First, choose something you like or that seems new & interesting. Second, don’t overdo it – exercise shouldn’t hurt (although it may twinge a bit) and you should not be so out of breath that you can’t talk. If it’s too hard you won’t want to do it again. Third, don’t do too little, either- for the most benefit, try to get your heart into its target zone (http://www.americanheart.org/presenter.jhtml?identifier=4736).
Fourth, try this challenge – commit yourself to exercising at least three times a week for six weeks. It can take this long to get into the habit and begin to feel the benefits. And finally, don’t listen to all that negativity in your head – just go exercise. You’ve only got one body to get you through life, so take good care of it!!
Christy,
Thanks for all you do! I also second (or third or forth) the stationary bike idea. A recumbant setup may be more comfortable for you. It allows you to sit with back support while you exercise the lower half. Tai Chi is excellent for balance and breath control. Stay healthy! We all need you.
Fern @ 145
Ya no kidding! Couldn’t believe what I was seeing when all those folks were walking into the courtroom 4-days-a-week. I only saw Cooper wearing a hat. It’ a 15% heat lose in the top of your skull. Of course Jane was wearing and would look really fine in any head gear. For nice warm Pendleton woolies check out hatpeople.com they’re the best.
dab at 158 — You know, as luck would have it, I bought myself both of those books on a whim the other day, because I love country French cooking and her recipes seemed like healthy versions of some of my favorites. Am reading the first book at the moment and enjoying it quite a bit.
Pissed in NYC @ 156
Oooooh – you have a water rower, too?? I love, love, love mine but haven’t been able to use it much since I hurt my back. I’m hoping once I lose the pneumonia weight all my joints will feel better & I can use it again more often (I have a treadmill, too, & just won an elliptical machine – joy!). I, too, won’t go to a gym so I set one up in our tiny house figuring that with osteopenia, a gym was much more important to my future than a guest room ever would be.
Dear Christy,
This has all been a struggle for me too. I end up devoting a LOT of time to my health. I meditate every day and am attuned to whatever subtle negative thought patterns I have… and to eliminate them I use my own methodology that I have developed over time. I do yoga exercise a few times a week and also aerobic exercise a few times a week. I have a rather restricted diet — I am a veggie, and never cheat on the red meat portion of that… but I do occasionally eat shellfish when I crave protein. I stay away from wheat and dairy most of the time. Your body is probably different and may have different requirements. I think it comes down to eliminating negativity in the mind and being attuned to what the body really wants. I can’t say it’s easy or that I am perfectly consistent — I do my share of emotionally driven eating on occasion — but my regimen sure helps me.
Hi Christy,
If there was one thing I could recommend for an immune system under constant barrage, it’s extract of mushroom. It tastes nasty, but after taking a couple of drops on the tongue daily for three weeks or so (yuuuuuuuk!), one can fight off bubonic plague with ease. It’s available at either the health food store or a naturopath’s office. We also have tubes of “Airborne” in every room of our house. (DH travels a LOT. I’d be happier if he didn’t bring home the assorted colds and upper respiratory infections…)
As for health habits, this might seem like a weird one, but I have felt much better since I stopped dealing with people that are toxic to me. I’m cordial, I’m polite, and I don’t let them in. I realize it’s easy for me to say. At the same time, the stress is worse than anything else on the body. IMHO, YMMV.
I realize I probably sound like a huge suck-up, but thank you again for all of your hard work here, and for such a great community. You add a lot to my life, and I’m very grateful for it.
-S
Hi there,
Started doing hot yoga (Baptiste Vinyasa) a year ago. Was not not in good shape when I started and feel so much healthier and happier now. I used to walk and sometimes bike – which is great in warmer weather but I tended to get creaky in wintertime due to lack of exercise. I love actually going to class, moreso than tapes. It is quite a workout, but its not competitive – as a beginner you take care not to overdo it.
I first noticed my breathing improved – I was able to take nice normal deep breaths (I was borderline asthmatic). Then I started to notice toning – I had never really stuck with an exercise program long enough b4 this.
But what I’m really noticing now is the overall effect on my spirits. One guy in my class joked and said: Do you ever noticed when you leave class, everyone is smiling at you? Honestly, its true, I think after a practice, you give off positive energy that is then returned by others. Whatever it is, being present, being fit, I’m finding that the spiritual component from yoga is one of the strongest benefits.
And even though we are deep in EPU-land, I thought I’d chime in on the dry skin issue:
My hands & lips get so dry they crack & bleed as soon as the cold weather gets here & I’ve tried most of the suggestions above (my favorite of them is to use the A&D ointment & white gloves – which works beautifully when my hands need a deep treatment). For every day use, though, I’ve finally found a great lotion that sinks in & lasts: Dove Intensive Firming Lotion. I’ve recommended to lots of friends (& my husband for his face) & everyone has loved it. It’s also easy to find & inexpensive (a big plus).
Edited to add – for when you need extra care elsewhere on your body, try the Cetaphil cream moisturizer (the stuff in the tub) – great for those scaly winter days when I need a bit more oomph.
SadieSue @ 163
Sadie: When I bought my waterrower I was afraid that if I didn’t like it I had just pissed away $1,000. When it came in and I put it together (it really did take only 1/2 hr), I decided to only do 5 minutes on the rower to see if anything hurt. I was fine and immediately realized that I made a fabulous purchase. My place is very small and space is at a premium, but, as you know, you can store the rower upright. It is a wonderful thing. And it is made in the U.S. using sustainably grown wood. I recommend them to everyone I know.
The price of oranges has gone up due to the freeze in CA, but normally the best thing I can do for myself in winter is fresh squeezed orange juice and oatmeal with dried cranberries. Watch the coffeecake. Cocoabutter is great for dry skin. Cold weather is heck on the joints. I’m doing stretches until it warms up. Relish the little one she’ll be grown before you know it.
I’ve always liked colorful clothes and shiny jewelry so when I won first place as a (non-dancing) bellydancer one Halloween, I knew my exercise calling. I’ve taken a number of beginner classes and finally have an instructer I like. I have hipscarves with shiny coins to liven things up. A woman in class had surgery on both knees a few months back, so she has a chair ready for when she needs a break. This term she’s taking it two times a week so it must not be that bad for her, and she is happy about her endurance gains.
I used to swim every day when I lived at an apartment complex that had a wonderful pool. It helped relieve stress from work along with taking off some pounds.
My nephew has eczema and we learned when he was a baby that Cetaphil lotion and cleanser works to relieve the itching. As one who used to wake up at night in the wintertime scratching my legs, I can vouch for that. I still use the lotion all over and the cleanser on my face. I save $$ buying the generic brand sometimes. (Apparently it’s edible too, as my nephew licked/sucked his arm after I “loshied him up” and I said “Yuck!” He responded “NO Yuck” slurp slurp)
Pissed in NYC @ 168
Yes, I feel as though my house is a showroom for the waterrower – everyone who comes over gets a demo & then wants to try it! One friend rowed for a few minutes & said “when does it get hard?” so I told her to keep going (which she did & then started to feel the effort).
And yes, the idea that it can stand up to get it out of the way is wonderful — if your ceilings are high enough! My house, though, was built in the 1790s & has 6′11″ ceilings & the waterrower is about an inch too long. Ah well. =)
BTW – I had to drive down to a Groton Long Point CT boatyard to try out the waterrower (I did try before buying). No gym supply place had one but several boatyards did (apparently they are very popular with crew teams for winter practice). It’s fun to “know” someone else with one – up til now, I hadn’t “met” anyone else with one!
Strategerie @
165
I absolutely agree on this. It is difficult – and more so when it’s family – but pulling away is necessary to your physical and emotional health.
For me, it was recognizing that I could not be ‘mommy’ to the whole world. I had to be ’selfish’ and let those who were grown-ups deal with their own problems and mistakes and heartaches without rushing in to do it for them. I offer sympathy, but it’s no longer my job to make it better.
brel1 at 169 — Love oatmeal with cranberries, blueberries and walnuts. Grew up on McCann’s steel cut oats, and I still make a big batch at the beginning of the week that we can reheat for a coupla days in individual servings. Haven’t done that for a while — thanks much for the reminder. :)
I wanted to add to my 167 on Dove’s Firming Lotion that since I discovered it last winter, I haven’t had a single day with cracked or dried skin on my hands or feet for 2 years (which is a huge record for me).
brel1 @ 169
Mmmm…oatmeal! I eat oatmeal with cinnamon and walnuts every morning in the winter. Nothing’s better than looking out at a frosty world with something hot in your tummy. I’ve even gotten my 4yo nephew hooked on it. (He’s the type that always eats whatever you’re having.)
When I was away for a few days, he had a fit because my son made him cereal instead. When I came back Justin said, “Nen, Nynan made me eat yucky stuff!” First time I’ve ever heard Lucky Charms called “yucky”!.
Millineryman @ 33
I’m with you. I also learned nitates or is it nitrites , esp. processed meats (bacon, hot dogs, lunch meats…) MSG, and STATIN medications (cholesterol control) caused me joint problems
http://www.rxlist.com/rxboard/lipitor.pl
user complaints
Your post struck me particularly, so I skipped reading (most)of the comments to reply. Like you, I have red hair, fight my weight, and bad knees. I need to be healthier and I need more energy, in my case to keep up with my very thin, very healthy husband as we go through our retirement years.
I haven’t won the battle, but I haven’t lost it either. My 88 year old mother has been more or less in a wheelchair for years because she can’t walk any more due to bad knees and being way to heavey for surgery to even be considered. Two brothers, one older one younger have developed Type II diabetes, providing additional motivation.
I (semi) retired in 1999 and lost 50 pounds over three years. I have managed to keep most (but not all) of it off. I focused on eating healthy, portion control, cutting back on sugar and white flour, and walking two or three times a week. I also used the internet to find support, there are several free sites out there, (E-mail if you are interested). My knees, snoring, and reflux improved dramatically.
The ‘04 election was when I started really fighting putting back on pounds. Maybe I was so depressed, maybe I started spending too much time reading political stuff on the internet and not enough time being more active. No excuse, but ten pounds made a difference in my knees.
When people asked me how I found success after failing so many times before, I told them it was the boring way. Eat less, eat healthy, exercise more. I could add to method that you need to add persistence, patience, and planning. Now, I’ll go read the other comments.
Hope you feel better Christy. Taking care of yourself is very important. It took me too many years to figure that out. And you must take care of all of yourself: physically, emotionally and spiritually etc. Balance is key. Naps and ice cream are very good, but not if that’s all you do for yourself.
When my son became a bit older than the Peanut, say 4 or 5ish, he became physically able to have adventures, and that spurred me to do more. Hiking, snowshoeing, planting a garden; I even took up downhill skiing again, and after much begging on his part, TaeKwonDo. Good for us both. We spend time together, have a lot of laughs, and get physically fit at the same time.
Hi Redd,
tho I’m not, many in my family are red heads
and I’m beginning to think there’s a clue there… some of us have not yet genetically adapted to agriculture, are still in the “gatherers” mode.
my arthritis was diagnosed when I was 20 and adding things to my diet has never worked.
the following was not a cure, but very helpful… to reduce variables
Dr. Sears, a Brit
Elimination diets are not easy, but think of it in terms of research both for you and possibly for your Peanut.
If you try this, respect the “nothing new” for four days rule. It takes that long for foods to move through our systems and as they break down, they contribute different molecules and concentrations of molecules vary.
I’ve learned to find some relief if I stay away from wheat and cow’s milk.
I’m hoping you find relief too, and that Peanut doesn’t have to deal with this.
PS, I have tried, with varied success to add strength training to my exercise. I know it is important – and will help my joints – and I’m still working on it.
Wow, I see you’re getting tons of advice, so this might be overload, but here goes:
People are sometimes diagnosed incorrectly by western practitioners who are looking to make the quickest disposition of a case. Are you sure you have an autoimmune disorder? Are you sure it’s arthritis (as opposed to something like vasculitis which also affects the joints)? Sometimes a good chiropractor and/or acupuncturist can work wonders with joint inflammation and other autoimmune symptoms. A 30mg zinc supplement might help also — it’s like WD40 for your immune system, especially when combined with well-formulated (ie. pure) Omega 3 supplements, which should also help your dry skin. I know many people who were diagnosed with arthritis, including some who had joint replacements, who turned out not to have it after all. It seems to be a catch-all for western medicine, so I’d get a second or even a third opinion.
Grandma Jo: Fifty pounds in three years is an awesome accomplishment. You go girl!
SadieSue: I don’t entertain at home (250-300 q. ft. interferes with that), but when I’ve had friends drop by they all want to try it. Not only is the rower great exercise (my legs and forearms are getting very toned, in particular), but it looks good too. Fortunately, even though my apartment is tiny, it has very high ceilings, so storing it upright isn’t an issue. And I have read that rowing crews use the water rower for training. Now that I have used the rower, I am tempted to try out rowing on water. That’s next. Hope you can start up on the rower again. Don’t know about you, but I feel great after rowing on it.
Oh and Christy? I assume people have suggested yoga to you (haven’t read thru all the comments yet) – but it is wonderful. Easy on joints, centering and relaxing, yet really works all your muscles, lengthens yours spine, works out the kinks, enhances your circulation – and you can do it in the company of a little one at home at whatever hour.
I recommend white-out. Use it on your calendar. :-) Seriously, my sister and I actually do this. We take a good look at our busy schedules and choose one obligation we can cancel or postpone. The white-out is to make us laugh — as much of a health benefit as is the reclaiming of a small spot of free time in our hectic days.
The Fast Track Detox Diet: Boost metabolism, get rid of fattening toxins, jump-start weight loss and keep the pounds off for good, by Ann Louise Gittleman
I just bought this book and will soon try the fast, pre-fast, and post fast – about 10 days of attention to what foods go in the body.
So far I’ve read that all of us are under assault from a toxic environment that provokes auto-immune and allergies, which also makes it difficult to lose weight. Sorry not to be more specific – my short term memory compromised by head injury in accident. I’ve been in physical therapy for past year and other therapies for relearning to read, remember, focus, etc. One in my brain injury support group says she has lost the ability to dream in color, another says she can’t imagine, say, the beach; it’s just a word. She lost ability to visualize. The brain is the great unknown. I’m still me but not.
What has worked for me is love. My children’s loving support (and financial!), acceptance of my goofiness, helping me move, fighting evil insurance company, loving me just the way I am now, and telling me, “I love you, Mom”
I practice everything every day. I have high hopes for this fast, cleanse, diet, new way of eating, whatever you call it. I’m able to read only a few pages – which I promptly forget! But I have list strategies so I can take the book to the (organic) market and shop from it. I have labels and lists all over my apartment (cold/hot) and I know now that I can ask for help from all clerks (what kind of cat food did I buy last time?) Or would you help me find items on this list? I used to be ashamed of this kind of asking – but that’s just silly. We are herd animals and need each other. We are progressives.
I know to ask for help because my children’s love has taught me value more interdependence. Good lesson for progressives. That’s who we are.
Pissed in NYC – I can see how 250-300 sq feet would limit entertaining! Our house is tiny by current standards (1200 sq feet with small rooms & no basement) but is feeling luxuriously large at the moment =). Tall ceilings can really make a difference in how small or large a place feels (sometimes our house feels even smaller than it is because of the low ceilings though most of the time it’s deliciously cozy).
Having lived in an 18×18′ studio, I know all about trying to fit just what is needed into a small space – and now that we’ve bought a small house, I’m glad I learned that lesson!
I am a well-trained, experienced, empathetic and tender physician. I have learned through working with patients, experience with personal illness, and continued study that the body is the greatest of all miracles. When one is healthy, it needs no guidence and relies on the exigencies of life and the social milieu to keep it in the state of health. This of course requires that a free and open mind is in charge and that the bodys’ needs are observed and respected.
The situation changes by almost 180 degrees when one is ill. The body often fights off an intruding disorder in ways that are often detrimental to the rest of the organisms’ function. The physicians’ effort to deal with these problems through the use of medications are usually frustrated by failure to choose the required intervention or to individualize the dose. Moreover, no doctor can listen to your body as you can. So a foreign set of judgements is at work–foreign in the sense that they are not coming from your own intimate observations of your own body.
One of the first questions I ask is whether I have given the patient doses of the (I hope) right medication required to do the job.Then I will encourage her to THINK. when you take the medication is there any indication that it is helpful? If so, would a smaller dose do just as well? etc. etc,
What is this long-winded preamble getting at? Listen to your own body! But use your head too. If you want to rest because it hurts, rest. But don’t keep resting. Keep trying to do a little natural exercise, like walking around the room once or twice and see how it goes. Don’t rush it. If twice works without aggrevating the pain
do again the next time and if it remains benign in its effect, try 3. If that’s too much, fall back to 2 and then in no hurry, try 2.5.
Eat what you long for but think about it. If it’s only hot fudge sundaes, consider whether eating half as much of it will do the trick accompanied by your favorite slice of bread. Take hot baths but use your judgement and don’t stay in too long or do it too often. Try to figure out how best to get restful sleep.
Pretty soon you BRAIN will tell you more and more. Or,if this resonates and need more discussion, an e-mail to me for thinking this through further, together, may be helpful. You have a beautiful Brain young lady and you can use it, not to sworry and fret but to maximally improve or even heal your body.
What helps me the most when my body and mind feel frazzled and out of whack is a big healthy dose of silence. Turning off the tv, radio, phone, etc and taking comfy cushions off the couch and stretching out on the floor for half an hour with my eyes closed, is my low-budget vacation for myself. I find if I do this, I don’t crave junk food as much and my mind feels so much more centered.
Longtime lurker but just had to post. I know it’s late but because I too have autoimmune disorders – relapsing polychondritis, RA, and MS, blah, blah blah – I just got out of bed. Not typical for me, but I’m having a bit of a flare the last few days.
Christy – I admire your courage, intelligence, eloquence, and stamina. You are an inspiration. I sent you a personal email a while back thanking you for being such a good role model for me given your health problems. That said, please take care of yourself; when striving for balance in your life, include yourself in the equation. The “oxygen mask” example is spot on.
When I lived in CT I was referred to a physical therapist who worked in a hospital-based rehab gym. Insurance paid the bulk of the charges. Core body work (the giant ball), warm pool water aerobics (they make these great bouyancy thingies that keep you afloat without having to tread water), low weight, low intensity weight training, recumbent bike, and stretching were all supervised by my physical therapist and made a huge difference. By the time I reached the end of my authorized sessions, I had enough of a head start to maintain myself on my own.
Since then I’ve divorced and moved to Asheville. The stress of the breakup and the move, and the disruption in routine has taken its toll and I doing poorly again. But I’m living in one of the most wonderful places in the world and looking forward to spring. Finally got a good team of docs and hope to start PT again.
In the meantime, my docs have changed some of my meds. I don’t know how you feel about pharmaceuticals, but I’ve tried them and every other alternative. Fish/flax oil is great and glucosamine/chondroitin can’t hurt, but for myself I am willing to take try the things my docs recommend. Some work, some don’t, some cause problems, but my docs work with me to find the best combo.
Two recent meds have helped alot with the joint pain and the profound fatigue you mention. (In fact, the reason I’m flaring is that I had a lapse in my prescription and had to go off them for a week – won’t happen again). First is Mobec for the joint pain – I’m in much less pain but have to be sure to eat with it. Nexium added to the mix makes it more tolerable. The second drug that has made a HUGE difference in the physical/mental fatigue of the condition(s) is amantadine. It’s the flu drug but was surprisingly found to greatly enhance alertness and activity levels in institutionalized Parkinson’s patients. My doctor has me taking it twice a day and I’ve been getting so much more done and feeling like my self since it kicked in. Again, today’s sleepin is because I’ve been off it this week, but that will change this afternoon. And here’s the great side benefit – it’s prophylaxis for most strains of the flu. I had pneumonia 4 times last year but on Amantadine I haven’t been sick while everyone else is hacking around me.
I can’t say that these will work for you and you may have already tried them. Just my own experience.
Oh, one more thing – a paraffin wax bath is great for hands and feet and something you could easily use at home. Deep, bone-warming relief and moisturizing to boot. I’ve even applied it too my knees with a basting brush. Just a thought….
Feel better and wear that mask, girl.
There’s a lot of love for you out here.
Christy -
Lots of good advice so far, but I know what you’re going through, and something that will definitely help is macrobiotics. People think it’s too weird or too complicated or too restrictive, but give it three months. Do it while you still have the energy to follow through. Give it three months. You will be amazed. Whole grains, vegetables, beans, miso soup, a little fish, etc. No sugar, dairy, meat or chicken. It’s not as bad or as hard as it sounds at first, but you would need to at least get a good book on the subject for guidance.
You can contact the Kushi Institute in the Berkshires (kushiinstitute.org) and someone there will be happy to talk to you about this – it’s the center for macrobiotics in the U.S. These people are amazing.
Other things I am doing are:
Nutriferon (supplement available from Shaklee to strengthen immunity)
Green Tea Complex
I hope in the midst of all the responses here that this one will be heard. It’s important.
I noticed several references to Curves and thought I should mention that according to Buy Blue this francise is 100% Republican in contributions. I also found a comment on the Buy Blue website.
A Christian website profiles owner and founder Gary Heavins.
I looked into this outlet a few years ago and stepped away when I knew about the contributions. Only today did I find the religious portion. I would not ever want to support pro-life groups or talivangelist groups in any way shape (excuse the pun) or form.
Well Christy, You mentioned your “crappo immune system”. Since I have been reading FDL you have become one of my most admired people, so if I could do something for you it would be my great pleasure. What I do (and maybe it works or maybe it is a placebo effect) is this: 1 multivit/mineral tab, 1000 Vit C, 200 E, 100 Selenium, 600 Calcium D and a Cal/Mag/Zinc tab. While my office mates have the usual winter crud, I avoid it. It might run 20 cents a day, but it’s pretty cheap compared to the alternative. And get your sleep! Here’s wishing you the best of health.
Christy, I see you have more than enough great advice here today. It wasn’t until I was in my 40s (now in my 50s) that I finally discovered that it is TRUE that exercise makes you feel better, reduces stress, and gives you more energy/emotional zest. It will save your life. Just find a trigger or a time for an appointment with yourself at least three times a week. (What mostly works for me is dropping my daughter off at school, but I struggle to find other “automatic” triggers during her vacations–and when she leaves for college in 2 1/2 years I’ve got to seriously reconsider.)
Also, while it’s true that you DESERVE an hour for yourself (and so much more), the reality is that if you instead promise yourself 15 minutes, you are much more likely to actually do it every day, and in the long run you will do more. Find a way to make it easy to give yourself this necessary gift.
Re nutrition, focus on fresh vegetables. I know you love to bake, and making that kind of treat once every few weeks is fine, but if you start to lavish that loving attention on preparing vegetables (e.g. chopped butternut squash with a little olive oil and seasonings, roasted at 425 for 15-20 minutes) every day, your diet will just start shifting without big effort and sacrifice. Start every day with a realistic plan for a healthy dinner, and start cooking early enough in the evening to make it happen. Eating Well (the magazine) is a great resource.
Bottom line: start small and simple, and just do it. Make it a habit you don’t break.
You wrote a great post which includes the rationale for prevnetive healthcare.
One point I’m learning that makes a fundamental difference is how we view and treat activity. If it’s treated as work (a la workouts, working at the gym, training, “sets”, “rounds” etc.), we tend to find it off-putting. But when it’s considered as enjoyable and fun – as in recreation, it’s something to look forward to. Instead of “having to walk three miles daily” I now walk my dogs along routes where we will meet other dogs and their human companions, where I’ll get to see interesting sights – sometimes nature wlaks, sometimes bookshops, sometimes architectural delights, sometimes tantalizing shop windows, etc, that it’s all entertainment, recreation and done with built-in rewards.
The same with eating and meals. I cut myelf off from fast foods unintentionally, because I decided to experiment with foods from different ethnic roots as a project of interest. I started with geographically-based dishes, worked through ethnic-based, cultural-based and specialty-based fare, and discovered that I had dropped a lot of added pounds, was eating much healthier food, was purchasing much more in the way of fresh fruits and vegetables, and generally, I enjoyed eating much more and felt better all around.
If I had made the project that of “going cold tukey” on fast food, I’m sure I would have failed.
The only “secret” I can offer is in finding what it is you want to try and how you want to please yourself, rather than deciding what you plan to give up or sacrifice.
Condolences, Christy – I’m right there with you. Three separate autoimmune disorders, joints and nerve endings that are constantly on fire, and the accompanying chronic fatigue . . . makes you not want to get out of bed in the morning.
Two things that did help me, though: First, I went off one of the meds the docs had me taking. It was doing nothing for me – except for packing on 70 pounds that I couldn’t lose, no matter what I did, and which, of course, just aggravated my symptoms. Took ten months to get it out of my system, but when it did – wow! I started losing weight, and adapted Pilates (can’t do any impact workouts) to my own needs, and voila! 50 pounds off in less than a year! Not much *actual* difference in pain levels (which people unlike us don’t understand is 24/7/365), but my energy levels are way up most of the time, and the portion of my conscious mind that the pain occupies is much, *much* diminished.
If you want to compare Rx or workout regimens (my version of the latter causes me virtually no additional pain, sometimes decreases it, and gives me much greater flexibility), you’ve got my e-mail address in mod; just let me know.
After spending my first 45 years of life in the disgustingly healthier-than-thou class, I got slammed with an autoimmune disorder (endometriosis), started feeling exhausted all the time, and converted my formerly solid muscle mass (I used to lift 50 percent of my body weight on the pull-up station) to 8 extra pounds of fat on my 5′1″ frame. The cause, I now know, was stress from going through law school in two years instead of 3, studying and sitting for the bar exam while working part time, and financial pressures that made me decide on law as a career and then continued as I got my education and tried to find a job in the rust belt.
I’ve learned that too much stress can kill you, and if it doesn’t do that, it can make you real sick. I’m a hard worker who has always stepped in and taken care of others. I thought I was invincible. Humbling to learn otherwise.
So, to our lovely Christy, who knows so much more about law and life than I ever will: teach yourself to stop short and relax when that fight or flight response takes hold. Stress floods your body with adrenaline and cortisol. These hormones are for escaping the saber tooth tiger. If they become part of your daily routine (and overwork can trigger them as surely as that asshole defense lawyer across the room), they’ll trigger receptors in your body tissues that manufacture all kinds of nasties. Body fat is notorious for manufacturing estrogen on its own in response to stress, which feeds endometriosis. It also feeds breast cancer. (Not trying to scare you–but I do think this is the missing link through which we’ll finally find The Cure.)
The interesting thing is that it’s easier to lose body fat if you get rid of your stress response. Stress-hormone-soaked body fat is resistant to weight loss. Exercise not only burns calories, but it replaces the stress chemicals with good chemicals. I work a lot on observing my gut reactions to stress and trying to calm them down before that initial adrenalin rush. I also lift weights (muscle mass creates good chemicals) and spend as much time outdoors as a I can because nature soothes me. How’s your sleep? I make sure my bedroom is absolutely dark (even a little bit of light can destroy your body’s ability to make melatonin, which blocks–you guessed it–excess estrogen). I bought a nature sounds alarm clock and stopped waking up to NPR news. I’ve learned to say no more, and to ask other people to shoulder more of the burden. It’s a constant process of learning to treat myself with tenderness, instead of like a machine.
fellow r.a. suffer here :wave: seconding the dietary treatments suggested above. nothing has worked for me previously but cutting out white flour, sugar, alcohol, and just about anything processed has been surprisingly effective slowing my joint inflammation for the first time ever… and i’ve dropped 10-15 pounds to boot! not sure what you’ve tried, but it’s the first thing that’s worked for me and was pretty easy too… whatever you do, stay positive and good luck!
Bob G @
138
With all due respect to Bob G, it’s irresopnsible to write off all supplementation as bogus. The modern diet is seriously lacking in Omega 3 fatty acids, and we have an over abundance of omega 6 fatty acids. You can eat more fish and flax, but that would require eating a lot more salmon, mackeral, and sardines then I’d be willing to eat in a day. Taking a 2 gel caps that provide that suggested gram is far more convenient.
M.B. Dratman, MD @
188
I would agree with the doc and many others here who have said listen to your body. Start slowly and increase, rather than going to the extreme and either injuring yourself or failing to live up to your unrealistic expectations. And as you slowly increase your movement you will feel better and that feeling of wellness will be the impetus to continue.
I love the story about the pedometer. That’s a realistic goal and one that can be measured and easily improved upon.
Take good care Christy and be well.
Just another quick thought. When my kids were the Peanut’s age it wasn’t always possible to get out for a walk or to the gym.
We danced – A LOT!! Just swaying gently like a blade of grass in the wind, gets the blood moving and the heart pumping. It’s remarkable how even the slightest motion can benefit our bodies and souls.
We also did a lot of stretching and yoga together. There’s a great children’s book called “Fly Like a Butterfly” that’s an introduction to yoga for kids. The story unfolds around different asanas, and it was a joy for both the kids and myself. If you can find it, I highly recommend it.
just saw these comments and thought I’d chime in … my son has pretty severe fibromyalgia which is related to RA but pain hits the muscles, not joints …
when it began, he could not get out of bed … but managed a regimen of getting up, then of walking for a minute, then five, then … etc once he was a bit more active, he took two classes weekly – modern dance and iyengar yoga … make sure you find a highly qualified teacher who knows how to coach you through pain and what positions to avoid, etc … it made a big difference for him … sill has fibro, still pain, but he is able to function close to normal most days
his rheumatologist luckily said … most important relief is exercise if chosen right
Several on this thread have recommended yoga, but be careful in your choice of class and – as most have said – listen to your body first and the “expert” second.
I want to recommend the gentlest form of yoga I’ve ever tried, “Yin Yoga” as taught by Bif Mithoefer ( http://www.biffmithoeferyoga.com/ ). Rather than try to get you into a posture and have the muscles exert and strengthen, this system brings you into a simple posture (with as much cushion support as you need) and then you rest there for 3-5 minutes.
This “yin” or surrendering action puts only gentle stress on joints, encourages greater circulation of synovial fluids to the joints, and activates the body’s health meridians as described in Chinese medicine.
And I’ll just bet you can do this yoga in the hot tub, too.
This practice has greatly reduced foot, knee & hip pain and stiffness for me (age 48 and 40 lb overweight).
Otherwise, I second the voices that sing, “Food, sleep, fun.” Consider a full-out detox program, check for possible food allergies, find fast & simple recipes for organic foods (I steam veg and drizzle with olive oil), and cut portion size by half.
Is there any way YOU can nap while Peanut naps? Sleep is incredibly important. Even a 15-minute catnap helps. You can calm your mind into nap mode with a spoken intention as you lie down, to go quickly into sleep and awaken in peace, fully refreshed, in 15 minutes.
DRINK WATER. Not only does it hydrate you, it calms the appetite.
A great part of reclaiming our health means turning our attitudes around to be about the Pleasure of life rather than the Struggle.
Just read inmymindseye @ 200 –
YES YES YES! Do as much movement and exercise as you can along with Peanut as part of your play! Wonderful!
Everybody wants a piece of the action.
Action!
Everybody wants some satisfaction.
Etc.
Perhaps you could model your excerise routine on Thor’s?…
Dancing to my favorite records. Christy, that Sam Cook you recommended months ago is pretty close to the top of my stack!!!
For moisturizing, Vermont Country Store has this fab English stuff called “Lotil”. And, don’t worry ’bout white gloves — buy the cheapest cotton tube-socks! That way, you also have instant puppet show for the Peanut!
Aubrey Organics “Vegecol Sensitive Skin” is the only thing that works on my cruddy face.
Many, many people who start exercise programs on an exercise bike get frustrated and stop because of sore knees. In nearly every case, the problems are bad seat alignment and bad programming of the bike.
You can find good info about seat alignment here.
As far as the other part of it is concerned, it’s easy to fall into the trap of setting the bike with some insane, macho level of resistance, and end up having to push so hard to turn the pedals over that knee pain is the inevitable result. Instead, ride the stationary bike the same way you would ride your road bike on level ground, i.e., set the resistance so that you can spin the pedals at 80-90 rpm without working too hard at it. Your heart rate will tell you when to increase the resistance. If you can’t get into a cardio training range in 30 minutes, you are ready for more resistance.
One widely used way of determining a cardio training range is to start by subtracting your age from 220. Multiply the result by .65 and .8, and that will give you the lower and upper bounds of a cardio training range.
CHS – I hope you see this. Reading your comment re: “crappy immune system” I just have to tell you about this product that has literally saved my life! I have no spleen and hence a very compromised immune system and got sick at the drop of a hat for years until a friend who’s an accupuncturist told me about:
Astra8
At first sign of weakened immune system (tired, coughing, etc) take 3 tablets 3X/day. Continue until you feel you’re strong again.
Need to keep you healthy and strong! Thank you for all you do!
-jen
Christy, just to let you know that I just rode my recumbent 55 minutes. Sometimes we need a little kick in the butt to get us to remember to put our own self first. I too suffer from a hideous autoimunne disease called EMS. I was exposed to a neurotoxin purchased from a healthfood store. EVERYONE, please take caution when taking these ‘fringe’supplements. Nothing from a healthfood store passes any kind of FDA inspection. It can be from any country and can be full of contaminates. Even chemical compounds that don’t even really exist. This is what happend to me. Exposure to a bioengineered SUPERBUG that was created to make tryptophane faster. I can go on and on but it would be a twilitezone thriller, believe me. Anyway I just wanted to say please be careful about what you put in your bodies people. I am now disabled. I suffer similar symptoms of GULFWAR SYNDROME. I had a complete hip replacement 11 months ago and I am due for another as soon as I can mentally handle it. I am 51. My joints and teeth are disinegrating and I suffer cognitive impairment, chronic pain etc. etc. It is so hard to do anything but for me to make my life worthwhile I have to put my own self first. For me that means I have to eat only real foods, no nutrasweet or splenda, nothing that isn’t a whole real isolated food. Nothing fake no secret sauce etc. I drink at least a gallon of water a day. I use it for tea and whatever. When I was in the hospital getting surgery I even had my own food from home for the month I was there. Thank you for sharing the fact that you feel off track because of your knees, we all got a lesson in ‘we are not the only one’. Posting this so late in the thread was because I read it earlier, and I came back after my ride to thank you for the kick. My weight has crept up a little and I still haven’t got up to my usual 1.5 hr. ride since the surgery. 55 minutes is a little closer, now back to bed :) lolo *g*
first time post::: i got onto firedoglake for the libby trail; amazing stuff and many thanks jane, swopa,et al;
christie::: get the book by EGOSCUE on exercising for men or for women; my soccer injury son got it for his ligament stuff on his right knee surgery; i got the woman’s book for my osteoarthritis in my right hip; DO the exercises; they work;
also, take one pill at breakfast of omega 3 oil, 1000mg; this LUBRICATES the joints; within a week you will feel better for this;
good luck with it all; hang in there; this too shall pass; val up in wpg minus 23 Centrigrade; lousy cold weather!
For the rationalists, I recommend the web site Quackwatch.com for discussions of fads and frauds related to health. Quackwatch is the gold standard for this topic. For example, Quackwatch deals with the nonsense about detoxifying the intestine:
http://www.quackwatch.org/01Qu…..detox.html
Some of the posts on this thread remind me of the tax rebels who claim that the income tax is unconstitutional. They manage to convince themselves of their assertions via heroic exercises in illogic, but their premises are fatally flawed. As a practicing biochemist (and member of the Endocrine Society), I find some of the posts here as strange as Christy must find the rantings of right wing bloggers and tax anarchists.
Many other posts in this thread make sense. Moderate exercise is good for us (you don’t have to be a marathon runner — walking 30 to 60 minutes a day helps a lot), but if your knees and hips are aching so badly that you can barely stand, it is hard to get the normal amount of exercise. For people with inflammatory problems, water exercise can be a real help, as can various forms of physiotherapy, but people without autoimmune problems should not expect that what works for them will work for somebody with r.a. There may be some overlaps, but there are also significant differences.
It was curious to find myself misquoted at Inmymind’seye 199, where the post has me saying “And as for vitamin supplements, even more nonsense. Luckily, their claims are baseless anyway.”
Perhaps it was just a case of unfortunate editing. What my post was meant to refer to are the nonsensical claims about supplements boosting the immune system. Here’s what I said: “If your immune system is attacking some of your tissue, why would you want to make that effect stronger, which is what the supplements industry is always promising people. Luckily, their claims are baseless anyway.” In other words, it is unlikely that a dietary supplement would boost the immune system enough to make your autoimmune condition worse, because it is unlikely that the supplement does much to the immune system at all (unless of course you are allergic to it). There are deficiencies of excess in the American diet (way too much sugar) and probably a relatively low intake of magnesium on the average, but these are easily solved. The difference between the scientific viewpoint and the food faddist viewpoint is that the scientist doesn’t see any food source as magic, or spiritual, or “natural,” or anything but molecules. Most of what we are (proteins and DNA and so forth) we make within our own cells. Most of us can cut down our intake of sugar by five-fold and be better off for it, at least in the long run, but there is nothing new about this idea at all.
An aside: There are lots of ways to boost the immune system — getting sick is probably the most effective, along with vaccinations and the normal give and take of everyday life, which is filled with exposures to bacteria and viruses of all kinds. The immune system is itself very complicated, and it has to deal with many threats of several different kinds. It’s probably not surprising that it misfires once in a while, something which is painful and difficult for the sufferers. The fact is that the best researchers and scholars don’t yet have enough information to explain the details of these disorders, but a lot of fundamental understanding has been added since the 1970s.
In the meanwhile, doctors treat autoimmune flareups as best they can. At one time they used colloidal gold injections (they worked to some extent), and later the various drugs that basically do what aspirin does have been popular (voltaren, the cox2 inhibitors, etc).
Life stress can induce a flareup, and the resulting pain induces more stress, so it helps if you can break the vicious cycle somewhere along the line. I don’t know if it is possible to avoid stress during the Libby trial, but we can try to do our best.
One other point that many normal people don’t quite understand: Some autoimmune sufferers have a shutdown in circulation to the fingers and toes in response to cold (Reynaud’s disorder). Once they get cold, it doesn’t matter how thick their gloves and socks are, because they don’t have enough circulation going to warm those parts up. The only relief is to get out of the cold, and the subsequent thaw can really, really hurt. Some people find that a glass of wine helps
These are the things I have found helpful for joint pain. 1) Stretching exercises in bed while warm before getting up to loosen up a little first. I had a book on this but cannot recall the title – maybe an online search will help. 2) a videotape “Tai Chi for Seniors” which has a short program of loosening exercises and a short form of tai chi which is not to hard to get down and can then be done in odd moments throughout the day. 3) The work of Dr. John E Sarno who has both videotapes and a book out on dealing with chronic pain. He ran the pain clinic at a big NY hospital for many years, and successfully treated many patients who had no relief from other interventions. The book alone will give you his whole program. It is called Healing Back Pain: The Mind-body Connection. I got the videotapes of the same name from my library and then bought the book to keep on with it. It doesn’t cost much to try it and it can be quite effective. Although the title references back pain the program applies to all chronic pain.
Christy:
I don’t have bad knees but I struggle to maintain my weight and usually am successful but every few years my weight will “suddenly” creep up on me. It’s because I eat too much and eat too much of the wrong things. It’s not rocket science. I find Weight Watchers to be the best (and I have tried several). It really is not a diet but the right way to eat a balanced diet and get enough fruits, vegetables, milk and protein for good nutrition.
I am very good about exercise though. I like weightlifting because you see the results faster and it helps keep your metabolism up. It’s pretty mindnumbing so I find it calming. Form is everything not heavy weights unless you can maintain proper form. I also find an eliptical machine the best for cardio, I have really bad feet with some arthritis in the big toe joint with the bunions so walking and the treadmill are out. That gives me shins splints anyway. But the eliptical machine is weightbearing (good for bone density) and gets your heart rate up without hurting knees, hips or feet. I also like Pilates because it really helps keep my back from going out. It strengthens the abs and back so it helps prevent back strain. Again form is all important and it takes a long time to get good at it. I go to a half price book store that has dvds and video tapes for exercise videos. Very cheap and I can get a variety of Pilates and other exercise tapes. I find rubber bands good for weight training at home if you don’t go to a gym. Joints are better protected when the muscles around them are strong.
For joint pain, the older guys at the gym swear by Certo (the stuff you use to make jelly). They put it in grape juice and drink it. They say it really helps with arthitis pain and joint pain. At least it won’t hurt you. I think weight loss, a good nutritious diet and movement simply keep you healthy so you feel better.
The key to fitness is getting your mind right. If you’re not ready for weight loss and exercise routines you probably will quit. Exercise has to become part of your routine so that you make an appointment with yourself and fell terrible if you miss your exercise time. Anyway, that’s what works for me.
Bob G @ 209, sorry if I misquoted you. I should have indicated that I had edited your post. My read on your 138 post -
“Would you have the comments section draw up the deed to your house? If you don’t have a rheumatologist, get referred to one. Some people do OK on nonsteroidal antiinflammatories like Voltaren (not for people with allergies to the aspirin family of drugs). I’ve heard good things about water aerobics (less pounding on the sore parts). Chelation therapy, except for heavy metal poisoning (chewing on paint chips lately?) is a total fraud and has killed people. There is one glimmer of truth in some of what the faddists are saying: the typical American diet is way high in calories of all kinds, and you can do with a lot less in the way of concentrated flour and sugar based products. For some people, this is very difficult. And as for vitamin supplements, even more nonsense.”
I read that to mean that you find the use of supplements to be nonsensical. Maybe I misunderstand.
.
Four years ago I was diagnosed with near adrenal failure. My doctors were offering steroids. Having seen my father’s health seriously deteriorate (kidney failure) after many years of steroid use, I chose to see a naturopath. I was put on bed rest, dietary changes, omega 3s, amoung some other supplements. I am well today and avoided the use of steroids by using alternatives.
To me it has made perfect sense.
I do agree that corporations selling supplements have one thing in mind and that one shouldn’t believe the claims that are made for either alternative supplements or mainstream pharmaceuticals by their manufacturers.
Exercise in a warm pool of water. Be sure you are covered up to your chest. Startby walking back and forth through the water, then as you get stronger do some stretches. Be very gentle with yourself
1) Get some glucosamine for the joints. Or eat lotsa shellfish. Either will help.
2) Get a George Foreman grill. You wouldn’t believe how sweet these are, and not just from broiling steaks (even well-done steaks are tender on this thing). They let the fat drain off and the meat — be it chicken, steak, pork or what-have-you (salmon fillets work beautifully) — is cooked with the flavor sealed in. (Love stir-fry but not the fat? Steam the veggies in the microwave, cook the meat on the George Foreman, chop up the meat and stir into the veggies with a couple tablespoons of oyster sauce or whatever you desire.)
3) RE: Catstaff @ #127 — I do a similar thing, but I use an ear syringe filled with warm salt water to rinse out my nasal passages. Do it at the first sign of a cold, and it zaps the cold dead; even if you’re doing it with the cold in full flow, it’s still good because it blasts open the nasal passages and kills the cold germs simultaneously; do it right before you go to bed and you’ll be able to sleep straight through the night.
Christy, for weaning off sugar which may help you with weight loss as well, I found that a food supplement (comes in capsules) consisting of concentrated forms of fruits (sugar removed) and veggies eliminated sugar cravings completely. Also, my skin became very soft. Dark green, leafy vegetables like swiss chard, kale, collards which contain high amounts of B-vitamins helps too. This may have been said already, but sugar cravings can be an indication of the body needing a higher qualify fuel.
I also for the first time am finding that weight loss is more difficult than it used to be. I like chocolate, but instead of eating it in high fat form like ice cream, I substitute hot chocolate or chocolate soy frozen dessert. Still get the taste but without the fat and calories!
What have I been doing lately? I’ve been fighting with insurance companies and doctor’s offices to get Orencia for my girlfriend (Her doctor prescribed it back in December, haven’t managed to actually get it administered yet). She has aggressive rhumatoid arthritis and lupus (and fibromyalgia for a kicker).
Autoimmune diseases suck. You really, really do have to take care of yourself first; my girlfriend had the same “take care of everyone else first” habit, but she was literally ordered to stop by her doctor because she was overworking her inflamed joints.
Water exercise is pretty much *the* recommended exercise for people with arthritis. Getting in a hot tub afterward is supposed to help too.